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Orlissa
Endometriosis Medication
My OB recently prescribed me Orlissa. There is not a lot of information out there as far as nursi...
  • Emily asked 1 month ago
  • last active 1 month ago
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Would you like to help finding a way to better manage Endo for you and me?
Community Discussion
Hi Everyone, I was diagnosed with Endometriosis 2 years ago and since then I’ve been trying...
  • Tanya Budhiwant asked 2 months ago
  • last active 2 months ago
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1 answer
314 views
Help
Community Discussion
This is going to be long winded so apologies- I had a c section in november (my second child). Af...
  • Shannen asked 2 months ago
  • last active 2 months ago
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1 answer
344 views
Flare up
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If you no longer have periods and are over the age of 50, can you have flare ups with symptoms of...
  • Stacy Neavitt asked 2 months ago
  • last active 2 months ago
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Endometriosis Support Group - Nashville TN
Community Discussion
My sister and I both have been diagnosed with Endo within the past couple of years and it feels j...
  • Hannah asked 4 months ago
  • last active 4 months ago
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492 views
Why can’t I find Dr.Seckin listed in here?
Community Discussion
Doctors get listed on iCareBetter with several mechanisms: They apply to be vetted with their su...
  • Sarah asked 4 months ago
  • last active 3 weeks ago
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581 views
Padma Lakshmi Says Endometriosis Left Her Occasionally 'Bedridden' for Over 20 Years
Community Discussion
“Once a week, every month, I was bedridden,” the Top Chef host, 47, tells PEOPLE Now. “I got my p...
  • masoud asked 5 months ago
  • last active 5 months ago
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588 views
Leah Williamson reveals endometriosis led to fears of missing games at Euros
Community Discussion
read more: https://www.theguardian.com/football/2022/dec/28/leah-williamson-reveals-endometriosis...
  • masoud asked 5 months ago
  • last active 5 months ago
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610 views
Marilyn Monroe’s battle with endometriosis
Community Discussion
Read more: https://www.cosmopolitan.com/uk/body/health/a41419168/marilyn-monroe-endometriosis/
  • masoud hosseini asked 5 months ago
  • last active 5 months ago
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696 views
Amy Schumer talks about living with endometriosis, a 'lonely disease'
Community Discussion
Amy Schummer: “It just hurts, and it’s really just a lonely, lonely disease.” http://www.washin...
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598 views
What is endo belly (endometriosis belly)?
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605 views
Is this normal cramping or not normal cramping
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For the last few years my periods have been becoming pain. I have noticed that I get my cramps an...
  • Alana asked 6 months ago
  • last active 6 months ago
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643 views
Pelvic Floor Physical Therapy leads to improved painful sex, chronic pelvic pain and pelvic floor muscle relaxation.
Community Discussion
Pelvic floor physical therapy is becoming very popular among those with endometriosis. A recent p...
  • masoud hosseini asked 6 months ago
  • last active 6 months ago
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675 views
Consequences of many laparoscopic surgeries
Community Discussion
What is not discussed much are the consequences of many laparoscopic surgeries for endometriosis....
  • Katharine Wowk asked 6 months ago
  • last active 6 months ago
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550 views
Can you include a “Canadian” Section on the icarebetter website
Community Discussion
I think your website is awesome.  That said, it has an American focus.  Our healthcare system is ...
  • Katharine Wowk asked 6 months ago
  • last active 6 months ago
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731 views
New Study Aims to Revolutionize the Diagnosis of Endometriosis
Community Discussion
https://www.gehealthcare.com/insights/article/new-study-aims-to-revolutionize-the-diagnosis-of-en...
  • masoud hosseini asked 6 months ago
  • last active 4 months ago
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762 views
Inflammation gene may be possible drug target for endometriosis
Community Discussion
https://www.science.org/content/article/inflammation-gene-may-be-possible-drug-target-endometriosis
  • masoud hosseini asked 6 months ago
  • last active 6 months ago
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1 answer
663 views
Surgeon name that had saved ovaries with a 9cm cyst
Community Discussion
If any of you have had a surgeon to remove a chocolate cyst and was able to save your ovaries ple...
  • Kelly Ellice Houck asked 7 months ago
  • last active 6 months ago
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1 answer
644 views
Two chocolate cyst
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Is there a surgeon who can remove the chocolate cyst and save both ovaries? Would robotic surger...
  • Kelly Ellice Houck asked 7 months ago
  • last active 2 months ago
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0 answers
654 views
How serious is endometriosis?
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5 answers
783 views
What was the first thing that you lost because of your endometriosis?
Community Discussion
It is like a full-time job to deal with endometriosis. And endometriosis has significant social, ...
  • masoud asked 7 months ago
  • last active 6 months ago
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9 answers
948 views
At what age did your first endometriosis symptoms start?
Community Discussion
Each patient has a different beginning to their endometriosis journey at a different age. Age som...
  • masoud asked 7 months ago
  • last active 6 months ago
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1 answer
702 views
Is there an Icare doctor in Canada?
Community Discussion
Hi, I live in London Ontario, is there a doctor in Canada that you recommend? Please, thanks! &nb...
  • Angelica Mendoza asked 7 months ago
  • last active 7 months ago
0 votes
1 answer
725 views
Half a year after the removal of the endometrioma, a new endometrioma of 2 cm grows again.
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The doctor suggests taking drugs – dienogest, progetins, which cause artificial menopause, ...
  • Lina asked 7 months ago
  • last active 2 months ago
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3 answers
801 views
What were your first symptoms of endometriosis?
Community Discussion
The first signs and symptoms of endometriosis aren’t always easy to identify, and they can vary s...
  • Masoud asked 8 months ago
  • last active 6 months ago
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0 answers
766 views
Endometriosis Awareness Poem
Community Discussion
Hey guys,  I’ve written some poetry about endometriosis. I’ve been really anxious about sha...
  • Lucy asked 8 months ago
  • last active 7 months ago
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3 answers
1k views
How did you convince your doctor that you have endometriosis?
Community Discussion
It is no secret that most doctors, including OBGYNs have limited knowledge and experience in diag...
  • Masoud asked 8 months ago
  • last active 8 months ago
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1 answer
808 views
Canadian Specialists
Community Discussion
While I know they are few and far between, can anyone recommend a specialist in Canada?  Ontario ...
  • Tanya asked 8 months ago
  • last active 8 months ago
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1 answer
852 views
What are the common symptoms of endometriosis? and why they happen?
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  • Masoud asked 8 months ago
  • last active 8 months ago
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2 answers
799 views
Two endometrial cyst
Community Discussion
Has anyone had surgery to remove chocolate cyst from the ovaries? I do not want to loose my ovari...
  • Kelly Ellice Houck asked 8 months ago
  • last active 8 months ago
0 votes
3 answers
817 views
Funding for Endo Treatment
Community Discussion
I’ve had such trouble looking for ways to possibly pay for endo surgery. I haven’t an...
  • Leslie asked 8 months ago
  • last active 8 months ago
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0 answers
776 views
Diagnosis
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Which method is best for diagnosing bowel endometriosis one year after Total hysterectomy and Oop...
  • Kathryn asked 8 months ago
  • last active 8 months ago
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1 answer
763 views
Help!!! I need help finding a doctor in Orlando, FL
Community Discussion
Hey guys, I can’t seem to find any good doctors that treat endometriosis in Central Florida (Orla...
  • Nicole asked 8 months ago
  • last active 8 months ago
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0 answers
757 views
Estrogen Dominance and endometiosis
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I have had endometriosis removed on two occasions and have also had multiple cysts. I had a hyste...
  • Lynda asked 8 months ago
  • last active 8 months ago
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0 answers
846 views
Endometriosis, Pelvic Floor Dysfunction, and SIBO
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https://anchor.fm/sallie-sarrel/episodes/Endometriosis–SIBO-and-Your-Bowels-e155422?fbclid=...
  • Amanda Lent asked 8 months ago
  • last active 8 months ago
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3 answers
723 views
How did endometriosis impact your mental health?
Community Discussion
The depth of endometriosis impacts goes beyond physical health. And many studies have confirmed t...
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1 answer
861 views
How did your insurance prevent you from receiving a good endometriosis care?
Community Discussion
With endometriosis, you might find it difficult to navigate insurance companies. For example, som...
  • masoud hosseini asked 9 months ago
  • last active 9 months ago
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9 answers
1k views
What was your out of pocket cost for endometriosis surgery?
Community Discussion
Surgical treatment is the gold standard of care for endometriosis. However, this is a costly proc...
  • masoud hosseini asked 9 months ago
  • last active 7 months ago
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0 answers
831 views
59yrs, left salpingo-oophorectomy, what would make endo flare?
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At 59yrs and 7yrs after a left salpingo-oophorectomy, neck of cervix remaining, what would make e...
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0 answers
843 views
Side effects of Uterus+Cervix removal
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What are the short & long-term side effects of Uterus+Cervix removal for Diffuse Adenomyosis ...
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3 answers
797 views
Menopausal, post endometrioma excision surgery
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I am 55 years old, suffering from menopause symptoms (hot flashes, heart palpitations, night swea...
  • Roni asked 9 months ago
  • last active 2 months ago
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13 answers
1k views
What were your uncommon symptoms of endometriosis?
Community Discussion
Common endometriosis symptoms include: Painful periods or dysmenorrhea Infertility Diarrhea duri...
  • masoud hosseini asked 9 months ago
  • last active 5 months ago
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7 answers
1k views
What were your endometriosis symptoms?
Community Discussion
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3 answers
930 views
Real world endometriosis stories from endowarriors
Community Discussion
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0 answers
928 views
How do you mentally deal with endometriosis?
Community Discussion
0 votes
2 answers
902 views
What is it like living with endometriosis?
Community Discussion
1 vote
17 answers
1k views
Endometriosis sucks because .... (fill in the black)
Community Discussion
Please share why you think endometriosis sucks.
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1 answer
949 views
I am 16 and need a endo Docter near ohio
Community Discussion
please help me
  • Jordan asked 10 months ago
  • last active 10 months ago
3 votes
14 answers
6k views
What are the long term side effects of lupron?
Community Discussion
Lupron is a very commonly used medication, and almost every person with endometriosis has used it...
0 votes
1 answer
1k views
Seeking recs for good endo doc in Baltimore area for 15 year old
Community Discussion
Hello, I’m looking for recs for endo-smart docs in the Baltimore or in Maryland for my 15 y...
  • Nancy Lord asked 10 months ago
  • last active 10 months ago
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