What was the first thing that you lost because of your endometriosis?

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It is like a full-time job to deal with endometriosis. And endometriosis has significant social, public health, and economic implications. It can decrease quality of life due to severe pain, depression, anxiety, fatigue, and infertility. It can ruin plans, education, relationships, friendships, families, parties, etc. Every person in the endo community has lost things to this disease. But patients tend to keep it to themselves and stay silent about this. However, it is extremely important to talk about these implications so that society hears how detrimental this disease is to the members of society. Endometriosis is not only a health issue but a social challenge.

Please share your experience and tell the world what the first thing you lost because of endometriosis was.

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Comfort. I started my period at age 10. I always had such heavy, painful periods. I didn’t realize endo belly was a thing back in my youth.  It would happen to me when I was at parties/events ( eating horribly and stressed) I would just bloat up to so much I’d have to undo my pants. I would have to hide my tummy with a couch pillow over my lap or with my purse. It was so uncomfortable and I felt out of place.  The fact that my period interrupted my life while I was on it was enough to feel like something was taken away from me. I also hated standing up from sitting when I had a heavy period- TMI- but big blood clots would come out. It was horribly embarrassing.

 

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The first thing I lost due to my endometriosis would be sports. As a little girl, I was heavily involved in sports. Once my periods started, I couldn’t exercise without significant pain.

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