What were your endometriosis symptoms?

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  • masoud hosseini answered 1 month ago
  • last edited 4 weeks ago
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Extreme bloating
Terrible low back pain that can also radiate to my hip and down my legs
Pain with urinating/full bladder
Pain with having a bowl movement/constipation
Sharp pelvic pain and pressure and sometimes just a dull ache and heaviness in my pelvis
Headache
Pain with sex
Sharp shooting pain in my upper abdomen
Nausea
Exhaustion
Infertility
I’m on suppression medication so I don’t have a period right now but when so did pain so intense I would be sick, unable to walk, nothing touched it except prescription pain medication which still took hours to work.

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Extremely painful period cramps starting at age 14. I had relatively painless periods for 3-4 years before that. At 14 the cramps became debilitating and I’d often vomit on the first day of my period. After the first day, I didn’t have many symptoms. I’d take as much OTC pain killer as was safe, only to usually still be stuck in bed with a heating pad because the pain was too intense for anything else. I would often miss school or work. Right before excision surgery, I was prescribed prescription strength aleve, and had next to no cramps on the first day of my period that month. For about 6 months to a year before excision surgery I was experiencing pain and fullness in my abdomen all month long, along with the need to pee often but not much coming out. I went to the doctor to see if I had ovarian cancer(because I had 3 of the 4 warning signs) or what was going on, and the doctor suggested I might have endometriosis. I went to an excision specialist in March 2022 and he found endo on my colon, rectum, endometrioma inside of my left ovary, and both ovaries covered in endometriosis. It was shocking to me that I had this wrong with me, when I thought I just had a “bad period”. After finding out I had endo on my colon and rectum, I connected my IBS type symptoms and painful bowel movements that I had been having for years back to my endo diagnosis. I had no idea they were related until after the surgery. All in all, debilitating periods, vomiting, painful bowel movements(so so painful), pelvic pain and fullness, urinary frequency and inability to empty bladder, and tailbone pain have been my symptoms. Hoping pelvic floor therapy alleviates the last standing symptoms.

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Intense cramping pelvic pain, severe burning in pelvis and down my legs. Back pain and pain shooting down my butt. Nausea, upset stomach, diarrhea. Lowered immune system and allergy flare ups during cycle. Brain fog, vaginal dryness, sharp random pelvic pain during and off my cycle. Infertility.

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My symptoms are the same every month but also during the month. I get shooting pains from my lower tummy down my crotch down to my legs, I get what I describe as stabbing pains these come  out of the blue & they literally lift me of the chair or if I’m waking I can fall down. I get what I call is like someone has there hand over my ovaries squeezing the life out of them. I get labour pains which sounds so silly me saying that considering I can’t have children but I used to say it was like a pineapple stuck & pressure down low only place I felt a little bit comfortable was on the toilet not going just sitting on it. It wasn’t till my friend & then a consultant told me it was labour pains I couldn’t believe that even know I was robbed of having a baby but I was having the pains. I get so tired to the extent of not being able to get out of bed that varies it could be a week to 2 weeks I get stabbing pains in my lower back.  My tummy swelling is a joke I literally look pregnant. My boobs  swell & are so sore to touch . I can be sick ,dizzy I literally curl up in a ball & Hope they all end soon. Then there is the bleeding if I’m heavy & there is clots the pain will be even more severe

  • Lou Gibbons answered 1 month ago
  • last edited 1 month ago
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Debilitating cramps, cyclical back and hip tightness that impacted work and exercise, bladder frequency, constipation, diarrhea, food sensitivities leading to previous 2 items + extremely itchy and painful hives, insomnia

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Pelvic pain
Rectal pain (lightening)
Painful sex during and after
Nausea
Constipation
Bloating

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