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14 answers
11k views
What are the long term side effects of lupron?
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Lupron is a very commonly used medication, and almost every person with endometriosis has used it...
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13 answers
2k views
What were your uncommon symptoms of endometriosis?
Community Discussion
Common endometriosis symptoms include: Painful periods or dysmenorrhea Infertility Diarrhea duri...
  • masoud hosseini asked 1 year ago
  • last active 9 months ago
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16 answers
2k views
Should you leave or remove the ovary with Endometrioma?
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I have a big lesion on my left ovary. A surgeon has told me they can keep the ovary with a high r...
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9 answers
2k views
What was your out of pocket cost for endometriosis surgery?
Community Discussion
Surgical treatment is the gold standard of care for endometriosis. However, this is a costly proc...
  • masoud hosseini asked 1 year ago
  • last active 11 months ago
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1 answer
2k views
Risk-benefit profile of removing endometrioma
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“Post-excision recurrence of endometrioma may be due to the regrowth of residual microscopic lesi...
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17 answers
2k views
Endometriosis sucks because .... (fill in the black)
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Please share why you think endometriosis sucks.
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1 answer
2k views
Leaving endometrioma vs. early menopause
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Besides fertility what are the complications of leaving an endometrioma versus the cons of early ...
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7 answers
2k views
What were your endometriosis symptoms?
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1 answer
2k views
How does menopause play into the management of endometriomas?
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Post-excision recurrence of endometrioma may be due to the regrowth of residual microscopic lesio...
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21 answers
2k views
What happens to fatigue after endometriosis surgery?
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Fatigue impacts 96% of patients. Does the excision of endometriosis surgery help with fatigue?
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0 answers
2k views
Chronic pelvic pain - worse at night.
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Sometimes I notice my chronic pelvic pain is worse at night, wakes me up at night, and then I sta...
  • Alana asked 1 year ago
  • last active 1 year ago
1 vote
1 answer
2k views
17 year old daughter and possible endometriosis
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Hi, I am looking for advice on how to proceed with my 17 year old daughter. Just yesterday, her g...
  • Christy Kirk asked 1 year ago
  • last active 1 year ago
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1 answer
2k views
Chronic pelvic pain first appointment
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What should I expect at an initial appointment for chronic pelvic pain and endometriosis symptoms...
  • Alana asked 1 year ago
  • last active 1 year ago
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9 answers
2k views
At what age did your first endometriosis symptoms start?
Community Discussion
Each patient has a different beginning to their endometriosis journey at a different age. Age som...
  • masoud asked 11 months ago
  • last active 10 months ago
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1 answer
2k views
Protocols for post-op pain management standards
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I wondered if you are aware of any efforts to evaluate patient feedback to establish more specifi...
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3 answers
2k views
How did you convince your doctor that you have endometriosis?
Community Discussion
It is no secret that most doctors, including OBGYNs have limited knowledge and experience in diag...
  • Masoud asked 12 months ago
  • last active 12 months ago
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1 answer
2k views
How to prevent fibrosis from recurring
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Female, 28 years old, and I’ve had three laparoscopic excision surgeries now to remove endo in th...
  • Maria Rovito asked 1 year ago
  • last active 1 year ago
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3 answers
2k views
What were your first symptoms of endometriosis?
Community Discussion
The first signs and symptoms of endometriosis aren’t always easy to identify, and they can vary s...
  • Masoud asked 12 months ago
  • last active 11 months ago
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3 answers
2k views
Is gaslighting more probable when someone complains about symptoms of endometriosis vs. when the same person has other issues like a headache or high blood pressure or etc.? If so, why?
Community Discussion
Everyone is welcome to participate in the discussion.
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1 answer
2k views
Seeking recs for good endo doc in Baltimore area for 15 year old
Community Discussion
Hello, I’m looking for recs for endo-smart docs in the Baltimore or in Maryland for my 15 y...
  • Nancy Lord asked 1 year ago
  • last active 1 year ago
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9 answers
2k views
What are the complications of endometriosis?
Community Discussion
Studies report endo-related complications in 90% of patients with bowel and bladder issues being ...
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0 answers
2k views
Which areas of the body affected by Endo result in the most debilitating symptoms?
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Are you aware of any research or evaluative endeavors to survey which areas of the body affected...
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1 answer
2k views
I am 16 and need a endo Docter near ohio
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please help me
  • Jordan asked 1 year ago
  • last active 1 year ago
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3 answers
2k views
Real world endometriosis stories from endowarriors
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3 answers
2k views
Menopausal, post endometrioma excision surgery
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I am 55 years old, suffering from menopause symptoms (hot flashes, heart palpitations, night swea...
  • Roni asked 1 year ago
  • last active 6 months ago
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0 answers
2k views
How do you mentally deal with endometriosis?
Community Discussion
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1 answer
2k views
What are the common symptoms of endometriosis? and why they happen?
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  • Masoud asked 12 months ago
  • last active 12 months ago
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2 answers
2k views
What is it like living with endometriosis?
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3 answers
2k views
Funding for Endo Treatment
Community Discussion
I’ve had such trouble looking for ways to possibly pay for endo surgery. I haven’t an...
  • Leslie asked 12 months ago
  • last active 12 months ago
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0 answers
2k views
Endometriosis Awareness Poem
Community Discussion
Hey guys,  I’ve written some poetry about endometriosis. I’ve been really anxious about sha...
  • Lucy asked 12 months ago
  • last active 11 months ago
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0 answers
2k views
Side effects of Uterus+Cervix removal
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What are the short & long-term side effects of Uterus+Cervix removal for Diffuse Adenomyosis ...
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0 answers
2k views
I can't even have my daughter sit on my lap
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I had my daughter 13 months ago via emergency c section. The pain was so bad after I had laparosc...
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1 answer
2k views
How did your insurance prevent you from receiving a good endometriosis care?
Community Discussion
With endometriosis, you might find it difficult to navigate insurance companies. For example, som...
  • masoud hosseini asked 1 year ago
  • last active 1 year ago
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0 answers
2k views
Endometriosis, Pelvic Floor Dysfunction, and SIBO
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https://anchor.fm/sallie-sarrel/episodes/Endometriosis–SIBO-and-Your-Bowels-e155422?fbclid=...
  • Amanda Lent asked 1 year ago
  • last active 1 year ago
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2 answers
1k views
Two endometrial cyst
Community Discussion
Has anyone had surgery to remove chocolate cyst from the ovaries? I do not want to loose my ovari...
  • Kelly Ellice Houck asked 12 months ago
  • last active 12 months ago
0 votes
1 answer
1k views
Canadian Specialists
Community Discussion
While I know they are few and far between, can anyone recommend a specialist in Canada?  Ontario ...
  • Tanya asked 12 months ago
  • last active 12 months ago
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0 answers
1k views
59yrs, left salpingo-oophorectomy, what would make endo flare?
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At 59yrs and 7yrs after a left salpingo-oophorectomy, neck of cervix remaining, what would make e...
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5 answers
1k views
What was the first thing that you lost because of your endometriosis?
Community Discussion
It is like a full-time job to deal with endometriosis. And endometriosis has significant social, ...
  • masoud asked 11 months ago
  • last active 10 months ago
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0 answers
1k views
Diagnosis
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Which method is best for diagnosing bowel endometriosis one year after Total hysterectomy and Oop...
  • Kathryn asked 1 year ago
  • last active 12 months ago
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1 answer
1k views
Half a year after the removal of the endometrioma, a new endometrioma of 2 cm grows again.
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The doctor suggests taking drugs – dienogest, progetins, which cause artificial menopause, ...
  • Lina asked 12 months ago
  • last active 6 months ago
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0 answers
1k views
Consequences of many laparoscopic surgeries
Community Discussion
What is not discussed much are the consequences of many laparoscopic surgeries for endometriosis....
  • Katharine Wowk asked 10 months ago
  • last active 10 months ago
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1 answer
1k views
Help!!! I need help finding a doctor in Orlando, FL
Community Discussion
Hey guys, I can’t seem to find any good doctors that treat endometriosis in Central Florida (Orla...
  • Nicole asked 1 year ago
  • last active 1 year ago
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0 answers
1k views
Inflammation gene may be possible drug target for endometriosis
Community Discussion
https://www.science.org/content/article/inflammation-gene-may-be-possible-drug-target-endometriosis
  • masoud hosseini asked 10 months ago
  • last active 10 months ago
0 votes
0 answers
1k views
Amy Schumer talks about living with endometriosis, a 'lonely disease'
Community Discussion
Amy Schummer: “It just hurts, and it’s really just a lonely, lonely disease.” http://www.washin...
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0 answers
1k views
New Study Aims to Revolutionize the Diagnosis of Endometriosis
Community Discussion
https://www.gehealthcare.com/insights/article/new-study-aims-to-revolutionize-the-diagnosis-of-en...
  • masoud hosseini asked 10 months ago
  • last active 8 months ago
0 votes
3 answers
1k views
How did endometriosis impact your mental health?
Community Discussion
The depth of endometriosis impacts goes beyond physical health. And many studies have confirmed t...
0 votes
1 answer
1k views
Surgeon name that had saved ovaries with a 9cm cyst
Community Discussion
If any of you have had a surgeon to remove a chocolate cyst and was able to save your ovaries ple...
  • Kelly Ellice Houck asked 11 months ago
  • last active 10 months ago
0 votes
0 answers
1k views
Estrogen Dominance and endometiosis
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I have had endometriosis removed on two occasions and have also had multiple cysts. I had a hyste...
  • Lynda asked 1 year ago
  • last active 1 year ago
0 votes
0 answers
1k views
How serious is endometriosis?
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1 answer
1k views
Two chocolate cyst
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Is there a surgeon who can remove the chocolate cyst and save both ovaries? Would robotic surger...
  • Kelly Ellice Houck asked 11 months ago
  • last active 6 months ago
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