Treatment
Excision is step one, and not all pain is resolved in one step.
One size does not fit all: by that I mean excision surgery will address endometriosis, assuming the surgeon is truly trained in disease recognition, distribution, and removal (not many gynecologists are in fact trained for this level of surgery). That is one aspect of pelvic pain, and it has to be expertly addressed to eliminate endometriosis as a cause. Other pelvic pain generators need to be addressed when pain persists after EXPERT excision. It is common for the disease to be missed by general gynecology at surgery, or for the disease to be intentionally left when the surgeon does not have the skills or training or when they believe they can “clean up” endo with medication (medication/hormonal treatments may seek to alleviate symptoms but do NOT stop the progression of the disease).
Other pelvic pain generators need to be identified, and a treatment plan devised for each. You cannot remove endometriosis and expect pelvic floor dysfunction to fully resolve. Nor does the removal of endometriosis address a painful uterus with adenomyosis, nor does excision resolve ovarian cysts which can return by pushing up from the body of the ovary with cycles. Bladder issues, such as interstitial cystitis, will also need its own treatment plan if present. Wellness is a journey, while some will feel well with endometriosis excised, others will have other issues that need attention.
Likewise, having been in chronic pain for years, you may need some emotional support to get past the impact of treatment failures, anger at the system (which did not fail you on purpose, rather did not know what it did not know, so did what they thought would help). It can be useful to seek help, even after resolution of symptoms, in learning to let go of the anger and victimization one can sometimes feel from being chronically ill and losing out on many aspects of life for many years. The nature of relationships also changes after the disease is resolved. Family members roles will change as you become healthier, and your role will as well. This can cause conflict and counseling can help. There is a sense of victimization patients can feel when the system fails them, but you can get past it rather than continue in that mode. It’s a decision you make.
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