Hello, I had 20 years of pain and suffering. From my first period, I had to be on painkillers all the time during my period. At the age of 16, I stopped having periods, then I had again, and I was diagnosed with PCOS and high insulin resistance. After a long time of visiting one doctor after another and all of them dismissing me and telling me that it was just stress or the pain in my head, I just stopped going to doctors. 4-5 years ago, at age 30, I couldn’t stand the pain, so I began again to try to see what was happening. Without any medication, my cysts just “disappeared,” and my insulin resistance came back to normal. But the pain was still there. I had really painful cramps in my uterus during both ovulation and menstruation; whenever I urinated, I felt that my uterus was coming out, and from the pain too many times, I felt that my bladder was never empty; I had really painful bowel movements and constipation or diarrhea, sometimes at the same time. I was bloated all the time. I have asthma, but every time around my ovulation and menstruation I had severe dyspnoea and pain in my ribs just under the breast. I had leg and hip pain, and in the last year, I “lost the sensation” in my left leg; sometimes, even when I hurt it, I couldn’t feel it because of the consistent pain. I also had stabbing pain in my bladder and uterus and the feeling of a stick with knives going inside of me. I had chronic fatigue, brain fog, migraines, and fainting spells. I tried the Mirena combined with Dienogest. I had all the side effects of dienogest, so I stopped it, and then Mirena was expelled after 2,5 months. In February, I found a doctor who, through a transvaginal ultrasound, said that I have adenomyosis and endometriosis, and we scheduled an excision surgery with a hysterectomy for adenomyosis and bilateral oophorectomy. The doctor said that I had stage 3 uterosacral endometriosis and also some around my bladder but didn’t send any specimens for pathology and he used both ablation and excision depending on the area. The pathology from my uterus confirmed severe adenomyosis, and from my ovaries, there were cystic follicles and corpora albicantia. The first 2 weeks post op I was really fine. In my 3rd week, I had my post-op app and my doctor prescribed me HRT, femoston 2/10, I had lots of side effects but the main thing was that I had excruciating lower abdominal pain mostly on my right side, like scratching and burning. My doctor changed my HRT to dermestril 50mg and prescribed blood tests, which showed inflammation, so he gave me antibiotics. From the moment I came out of surgery, I had a temperature of 35,5-35,9 Celsius, and at the time, I was on Nurofen and solpadeine every 4 hours, so we couldn’t determine if I had a fever. The inflammation showed progress with the antibiotics, but the pain was still there, so we thought that it may be a side effect of HRT, so I stopped them. On my 5th week post-op, the pain eased, but it remained slightly on one spot on my right side, which I considered normal due to my recovery. Also, after surgery, I have extreme polydipsia. I drink 9lt of water in a day, and I urinateb12,5lt; we checked blood glucose and electrolytes, and they are normal, just my eGFR and blood and urine osmolality are low. I am trying to control my water intake up to 4lt a day now. I also had extreme constipation for about a month. But my main concern is that as the days pass, my right leg isn’t hurting, but I can’t step on it normally, and when I do, I have pain in my right pelvic side. Also, on the days that would have my ovulation and menstruation, all the symptoms came back except the cramps from my uterus, which was removed. Slowly, each day, one by one, my symptoms are back: the painful bowel movements, the pain in the bladder, the pelvic pressure, the stabbing pain, and the feeling something is sticking inside of me from under. Dyspnoea also started again these last couple of days, as well as brain fog and migraines. I also have the pain in my ribs. Is it possible for endometriosis coming back so soon or maybe is something else that was coexisting with endo and just now came on surface.
Endometriosis
Top Endometriosis Specialist Florida: Your Path to Pain-Free Living
Endometriosis affects approximately 10% of women in Florida, impacting their daily lives and overall well-being. This chronic condition, characterized by the growth of uterine-like tissue
Hello. Your symptoms may be related to endometriosis relapse (remnant endometriosis) and also because of pelvic nerve entrapment – a non-neurogenic radiculopathy/neuropathy.
You should perform a pelvic MRI with a radiologist that have in endometriosis diagnosis.
Take care!
I have schedule this week a pelvic MRI and we will see what it will show. Although I already had a CT scan and it was clear. Thank you for your response