Endometriosis
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December 10, 2024
Body therapies like massage, acupuncture, PFT down reg and dark colored fruits and vegetables, easy to digest meals with a high nutrient density all combined as a good base. Releasing the emotional baggage took singing songs by India Arie, doing my dance routine for keeping spirits up and journaling all the strong feelings out. Meditation with Sandra Rolus on YouTube to release, and rebalance and love myself everyday.
My pain is way . after surgery but I still suffer bouts of fatigue a few times a month. I had a hysterectomy for adenomyosis and excision of endo at the same time so it could also be from that (ovaries in tact).
I’m almost 8 weeks out from excision surgery with an icarebetter surgeon I love! Pain is way down (some healing pain is ongoing) and fatigue is a work in progress. My fatigue has been 24/7 for many years and is worsened by poor sleep and over-exertion. I’m now working with a pelvic PT, experimenting with nutrition changes, doing meditation and breathwork, and trying other lifestyle/sleep changes, which I hope will improve fatigue as my body adjusts to the endo tissue being gone and down-regulates from being in pain for so many years. I hope my fatigue isn’t tied to a comorbidity I’m not aware of and that it will fade with time and healing!
I’m curious about this too, I am 4 mo post op for endo, adenomyosis, with hysterectomy (surgeon left ovaries) and I still dealing with fatigue. Pain is better but not gone. I also used an icarebetter surgeon
6 months after surgery: the pain is gone, the chronic fatigue has not changed. It’s the same as before. I was very hopeful but I have to resign myself.
I was shocked at how much more energy I had post excision. I hadn’t even realized how fatigued I really was. After about 2 weeks of recovery I really noticed a difference.
I had my sevond surgery 6 months ago. Perhaps an improvement when it comes to fatigue, but not a big difference.
All my symptoms, including fatigue, got better for about 5 months after the surgery – then on the pill I was very good for 2 years, then realized the pill had been doing more harm than good for 3 years and decided to stop
My fatigue has not changed from before/after surgery. However, I’ve made many changes after surgery to better manage the fatigue. I’ve reduced my exercise (from running to walking), now work remotely, and plan rest breaks before/after activities.
My fatigue improved dramatically after my last surgery, now that I’m 100% endo pain free. My previous surgeries made no difference to my fatigue, which is interesting because it turns out they were incomplete with lots of disease left behind.
I am about 5 months post-op from endo excision plus hysterectomy (kept ovaries). Previous to my surgery I had been on a slow decline but the last few months of waiting for surgery, I was extremely fatigued – I had gone from being very active and athletic to not even being able to fold laundry or do dishes. Recovery has been tough and it took about 3 months to really start feeling better but I am feeling much better now and able to exercise again. Nothing too strenuous, and I do still have days when I feel fatigued and need to rest, but things are so so so much better.
I’m 2 years post excision and hysterectomy from stage 4 endo. I never truly had energy prior to diagnosis or surgery. Once I fully recovered, in total 6 months I had energy I never dreamed I would have. The brain fog lifted! It has stayed that way since. Fatigue is also a symptom of pain. Once my pain lifted so did the fatigue.
It’s been 2,5 years since my excision surgery. I was as good as bedridden before, and had been for 5 years, so even though all other symptoms disappeared with the surgery, fatigue has been the hardest to get rid off. I still see improvement.
I’s say after excision it took a good 8 months to a year to see benefits regarding fatigue. I do have adenomyosis, so certain moments in my cycle cause fatigue still. I wouln’t say i am mega energetic after it all, but it did greatly improve endo related fatigue
Fatigue has actually gotten much worse post surgery. Pain is not as frequent, but is higher than pre surgery.
Mine is significantly better post excision, even though my thoracic endo was not excised, just my abdominal endo. I still get bouts of fatigue, but it’s not constant like it was. My husband commented on my increased energy pretty much right after surgery. The difference was very noticeable even though it did take a good year to fully recover from surgery.
En mi caso quedé peor de mi fatiga después de la cirugía
I had full and extensive excision done by a Nook expert in January and it changed my life. My energy levels have risen by 90% and pain dropped to 10% of what it was. I also manage it with healthy and intuitive eating, extremely low gluten, sometimes go 2-4
Months without it, 90% plant based, not too much dairy, low alcohol, all in moderation basically. When I drink alcohol I ensure I stick to clear spirits of organic, vegan and biodynamic wine. I don’t drink lager or ale as I accidentally learnt that was a strong flare up trigger , so a massive no go. I now am@able to finally be more mobile, and exercise again. I do loads of walking and cycling and various yoga. I can’t express how my life changed since January and I do hope it’ll remain this way… however, this disease is about as predictable as a demented hyena, so you never know. Good luck ladies
My fatigue has not changed too drastically since surgery, but my pain levels and cramps decreased tremendously which has definitely helped my energy a bit! My periods have caused me to become anemic tho, and unfortunately since I didn’t have a hysterectomy and do not take BC, that really made an impact on my fatigue and energy. I will be getting a partial hysterectomy in Nov and hopefully that will help.
My cyclic fatigue (and dizziness) has improved dramatically at almost 8 months post surgery, but I still have a lot of baseline fatigue from suffering severe pain for years. I do still get some fatigue in my cycle but it’s much more manageable.