I have had multiple ablations and DNCs since my early 20s. I am now 45 and had a partial hysterectomy last year due to heavy bleeding that led to years of requiring low ferritin and needing to get ferritin infusions. During my laparoscopic hysterectomy, they found the following: Assessment: Operative note reviewed and findings revealed endometriosis in the cul-de-sac and broad ligaments on both sides. Surgical pathology reviewed and remarkable for adenomyosis and leiomyomata (up to 3.8 cm) of the myometrium, paratubal cysts of the bilateral fallopian tubes, and a mildly disordered proliferative pattern of the endometrium. I also have primiforous syndrome, and I’m learning that there is endometriosis that affects your nerves, especially the sciatic. I have severe low back, hip, groin, down legs, and into the feet pain. I’m looking for excession specialist, but I’m feeling very overwhelmed with finding one who is also experienced in nerves and the sciatic along with the pelvis. Any advice would be so appreciated and helpful. I am located in Northern California.
When should endometriosis be re-evaluated?
I’m 33years old. I was diagnosed with stage 1 endometriosis via laparoscopy in 2021 when doing fertility treatments. My symptoms were/are infertility, pain with sex,
November 5, 2025
I am sorry you are still dealing with this after multiple surgeries. Endometriosis in the posterior cul-de-sac and uterosacral ligaments can definitely cause low back, hip, leg and sciatic pain. Any fellowship-trained, high-volume, board-certified Minimally Invasive Gynecologic Surgeon with a practice focused on endometriosis excision should be able to take care of this for you. In very rare cases, the sciatic nerve is directly involved (this should show up on a special endometriosis protocol MRI – make sure you get your imaging done at a high-volume center experienced with endometriosis), in which case you may want a surgeon who is formally trained in neuropelveology. However, most patients who have your constellation of symptoms do not have direct nerve involvement.