I feel like I’m wasting my life on the couch under a heating pad

There’s no cure for endo and only so little money invested in endo research

There are too many doctors that make it worse or neglect it.

I have to live by its timeline, not mine

Even excision with an expert didn’t relieve 100% of my pain

Pushing through the pain takes away years of your life. You spend so much time just trying to make it through a week, a day and sometimes even an hour you end up wishing your life away.

It’s literally ruined my life I’m 44 & I’ve suffered the excruciating pain for 31 years. Numerous operations with surgeons who know nothing about it I’ve had marriage breakdowns,can’t conceive I’m so alone stuck with this pain.So much more I could write, but this would be like a chapter in a book if I don’t stop now.

I can’t be “ME” anymore. Between the pain, discomfort, meds, fatigue, I can’t keep up with my life anymore.

The pain is unbearable, but because nobody sees you on your bad days nobody understands. And the mental toll… having a flare- up/ attack and knowing you have to go through that again…

Its mentally drained and effects all your relationships

Because you need to save money to pay for a surgery instead of a house, holidays, kids etc.

It takes my time and energy away from dreams and plans.

No one else can see the cause of the pain I’m in.

It makes me feel like a failure for not being able to achieve the things I used to.

Can’t live your life the way you want to.