What is it like living with endometriosis?
I am 25 and have always had painful periods. They were “bad” in high school but I could still do my every day stuff. Then when COVID hit and they got worse. I have never experienced anything like it. Before covid started I was suppose to get an ultrasound, but then when the hospitals got all crazy I pushed my pain to the side. I was taking the pain as it came and for the longest time I thought this was normal and just what I had to deal with. The last two years I have missed work, school and events because of it. Nobody really understands what I go through every month. It’s something I have just accepted and never complain about anymore. January 2022 I told my primary for the third time “ya know exercising, eating right etc. is just not helping me. I am still in A LOT of pain”. She ordered an ultrasound and it came back with an 4 cm cyst on my right ovary. Little did I know that would start a long journey ahead of finding the right doctor. I was first recommended to a GYN office down the street. There TWO options for me birth control or an IUD. I left crying that day because I didn’t want to take birth control or have an IUD. Not long after that day I opened up to a coworker of mine. She said “it sounds very similar to what I experienced at your age”. This coworker and close friend of mine has done nothing but guide me to the right resources, doctors and of course icarebetter!!! For the longest time I thought I was alone. Since January I have lost count of how many doctors, ultrasound, and appointments I have been to. One appointment consisted of visiting the cancer center because my blood levels were abnormal. For a split second I thought I had cancer, and that doctor wanted to take the whole ovary. I haven’t been officially diagnosed, but everything is pointing to Endometrioma. I finally found the one and only Dr. K here in Detroit MI. My appointment with him last week was bitter sweet. He was so supportive, explained everything and made me feel really comfortable. The other good part is icarebetter made him so popular… and then the sad part is I won’t be able to get surgery until June 2023. I know his team is working really hard and I am so grateful I found icarebetter because without you guys I would not have a clue what to do. I think my plan is now to get a surgery to see what is going on and be diagnosed. Dr. K said if it’s stage 1 or 2 the doctor that is training under him could take it out, but it’s more complicated I would need to wait for him to do it. In the meantime I will be taking care of my self, and trying to support my body with more all natural remedies.
- Christina answered 2 years ago
- last edited 2 years ago
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I am 25 and have always had painful periods. They were “bad” in high school but I could still do my every day stuff. Then when COVID hit and they got worse. I have never experienced anything like it. Before covid started I was suppose to get an ultrasound, but then when the hospitals got all crazy I pushed my pain to the side. I was taking the pain as it came and for the longest time I thought this was normal and just what I had to deal with. The last two years I have missed work, school and events because of it. Nobody really understands what I go through every month. It’s something I have just accepted and never complain about anymore. January 2022 I told my primary for the third time “ya know exercising, eating right etc. is just not helping me. I am still in A LOT of pain”. She ordered an ultrasound and it came back with an 4 cm cyst on my right ovary. Little did I know that would start a long journey ahead of finding the right doctor. I was first recommended to a GYN office down the street. There TWO options for me birth control or an IUD. I left crying that day because I didn’t want to take birth control or have an IUD. Not long after that day I opened up to a coworker of mine. She said “it sounds very similar to what I experienced at your age”. This coworker and close friend of mine has done nothing but guide me to the right resources, doctors and of course icarebetter!!! For the longest time I thought I was alone. Since January I have lost count of how many doctors, ultrasound, and appointments I have been to. One appointment consisted of visiting the cancer center because my blood levels were abnormal. For a split second I thought I had cancer, and that doctor wanted to take the whole ovary. I haven’t been officially diagnosed, but everything is pointing to Endometrioma. I finally found the one and only Dr. K here in Detroit MI. My appointment with him last week was bitter sweet. He was so supportive, explained everything and made me feel really comfortable. The other good part is icarebetter made him so popular… and then the sad part is I won’t be able to get surgery until June 2023. I know his team is working really hard and I am so grateful I found icarebetter because without you guys I would not have a clue what to do. I think my plan is now to get a surgery to see what is going on and be diagnosed. Dr. K said if it’s stage 1 or 2 the doctor that is training under him could take it out, but it’s more complicated I would need to wait for him to do it. In the meantime I will be taking care of my self, and trying to support my body with more all natural remedies.
- Christina answered 2 years ago
- last edited 2 years ago
- You must login to post comments