Category Archives: Endometriosis Specialist

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Top Endometriosis Specialist in New York—Find Expert Care Near You Today!

New York’s Endometriosis Experts: Hope in the City That Never Sleeps

Endometriosis affects millions of women worldwide, causing debilitating pain and potential fertility issues. For those living in or near New York City, finding a top endometriosis specialist is crucial for proper diagnosis and treatment. This comprehensive guide will help you navigate the process of locating expert care, understanding treatment options, and taking control of your health.

Living with endometriosis can be challenging, but with the right medical team by your side, relief is possible. New York City is home to some of the world’s leading endometriosis experts, offering hope and healing to those struggling with this complex condition. Moreover, New York’s specialists combine the latest endometriosis research, treatment, and community resources. Whether you’re experiencing symptoms for the first time or seeking more effective management of long-standing issues, this article will equip you with the knowledge to find the best care available. Finding expert care is a big step toward reclaiming your quality of life!

Endometriosis Symptoms Checklist

20 Symptoms of Endometriosis

Endometriosis occurs when tissue similar to the uterine lining grows outside the uterus, often affecting the ovaries, fallopian tubes, and pelvic lining. This misplaced tissue responds to hormonal changes, leading to inflammation, pain, and potential scarring. The condition can have far-reaching effects on a woman’s quality of life, impacting everything from daily activities to intimate relationships and fertility.

Endometriosis Symptoms Checklist for Your Guidance:

  • Heavy bleeding
  • Fertility Issues
  • Fatigue
  • Bloating
  • Vomiting
  • Back pain
  • Excessive urination
  • Leg pain
  • Constipation
  • Ovarian mass
  • Postcoital bleeding
  • Pain with urination
  • Pain with bowel movements
  • Blood in urine
  • Rectal fullness
  • Flank pain
  • Rectal bleeding
  • Diarrhea
  • Nausea
  • Cramps
  • Pain during intercourse
  • Painful periods

It’s important to note that symptoms can vary widely between individuals, and some women may have few or no apparent symptoms despite having the condition. This variability makes accurate diagnosis crucial, highlighting the need for experienced specialists to recognize the subtle signs of endometriosis.

Advanced Endometriosis Treatment in New York City

New York City is recognized worldwide for its exceptional healthcare system, offering patients access to cutting-edge treatments and advanced research. This reputation for medical excellence is precious for those with complex conditions like endometriosis, who benefit from having a range of specialized care options nearby. In New York, renowned experts consistently push the boundaries of what’s possible in endometriosis treatment, often setting new standards for care. Patients here can access minimally invasive surgical options, advanced diagnostic imaging, and innovative pain management techniques that may not be widely available elsewhere.

Moreover, New York is home to many leading researchers actively working on understanding and treating endometriosis. For those impacted by endometriosis, this means better symptom management, faster recoveries, and potentially reduced recurrence rates. In addition, the collaborative environment among New York’s medical institutions allows for a holistic approach to patient care. Specialists, surgeons, pain management experts, and reproductive endocrinologists often work together to design individualized treatment plans. 

Best Endometriosis Surgeons in New York City

New York City is home to numerous world-class specialists, making it an ideal location for those seeking expert endometriosis care. These surgeons often have extensive training in minimally invasive techniques, such as laparoscopic and robotic-assisted excision surgery, which can provide more effective symptom relief and lower recurrence rates than other methods. Leading surgeons also frequently collaborate with other specialists to offer comprehensive, individualized treatment plans tailored to each patient’s needs.

icarebetter directory for endometriosis specialist

Among the best endometriosis surgeons in NYC are Dr. Andrea Vidali, Dr. Lora Liu, and Dr. Amanda Chu. They are known for their expertise and dedication to advancing care for patients with this complex condition. You can find more information about them and search for additional doctors in New York at iCareBetter. On this platform, you can find vetted top-notch doctors specializing in treating endometriosis and women’s pelvic pain worldwide.

Dr. Andrea Vidali

Dr. Andrea Vidali

Dr. Andrea Vidali, a renowned endometriosis and reproductive immunology specialist, is celebrated for his minimally invasive excision surgery skills and personalized approach to fertility preservation. Through his comprehensive treatment plans, he has helped many women achieve successful pregnancies.

Dr. Lora Liu

Dr. Lora Liu

Dr. Lora Liu is recognized for her precision in laparoscopic and robotic-assisted surgeries, providing endometriosis patients with effective and minimally invasive options to manage endometriosis. Her commitment to innovative techniques and compassionate approach to patient care make her a trusted figure in New York’s medical community. She is known for her collaborative, patient-centered methods, empowering individuals with endometriosis to reclaim their quality of life.

Dr. Amanda Chu, MD

Dr. Amanda Chu

Dr. Amanda Chu, MD, is a Board-Certified Gynecologic Surgeon specializing in minimally invasive techniques, particularly endometriosis excision surgery and treatment for pelvic endometriosis and fertility-related issues. Her expertise extends to multi-organ endometriosis and its impact on pain, fertility, and overall quality of life. Dr. Chu is dedicated to enhancing patient and provider education on endometriosis. Her focus areas include advanced robotic surgery, chronic pelvic pain management, and advanced hysteroscopy.

Endometriosis Treatment Options New York: As Diverse as New York Itself

Dr. Vidali is a Video-Vetted excision surgeon for endometriosis. His approach to endometriosis is holistic, addressing the disease and any potentially associated conditions. Currently, since we lack medical options for curing endometriosis, the primary treatment step is excision surgery. Additionally, Dr. Vidali utilizes hormonal contraception, preferably progestins—either orally or via IUDs—to manage bleeding or any adenomyosis-related factors, if present. He does not favor GnRH agonists or antagonists, as, in his experience, their risk and efficacy profiles are not superior to those of progestins, making them less desirable.

Dr. Liu, a Video-Vetted excision surgeon for endometriosis, believes that the etiology of endometriosis is complex and multifactorial, and she supports the Mullerianosis theory. However, other contributing factors also exist, including oxidative stress, inflammation, impaired immune response, genetics, and both endogenous and exogenous hormones, all of which play a role in the pathogenesis and proliferation of endometriosis. 

Dr. Amanda Chu, a Video-Vetted excision surgeon for endometriosis, believes that the approach to endometriosis care is rooted in the understanding that no single theory thoroughly explains all cases of endometriosis. She believes that specific theories may apply more significantly to individual patients. While older concepts like retrograde menstruation and coelomic metaplasia remain valuable, Dr. Chu emphasizes the importance of ongoing research. She believes emerging insights into epigenetics and immune dysregulation will play a growing role in understanding and treating endometriosis.

Advanced Diagnostic Techniques

Accurate diagnosis is crucial for effective endometriosis treatment. Top specialists in New York utilize a range of advanced diagnostic techniques to identify and assess the extent of endometriosis, including:

  1. High-Resolution Imaging

Advanced imaging technologies, such as transvaginal ultrasound and MRI, can help visualize endometriotic lesions and assess the extent of the disease. These noninvasive methods are often used as initial screening tools.

  1. Laparoscopy

L laparoscopy is considered the gold standard for endometriosis diagnosis. It allows doctors to inspect the pelvic cavity for endometriosis tissue and samples visually. This minimally invasive surgical procedure can also remove lesions and adhesions.

  1. Biomarker Testing

Emerging research explores the use of blood and tissue biomarkers to aid endometriosis diagnosis. While yet to be widely available, some specialized centers may offer these cutting-edge tests as part of their diagnostic toolkit.

Innovative Treatment Approaches in New York 

New York’s top endometriosis specialists offer a range of treatment options, from conservative management to advanced surgical techniques. Some of the innovative approaches available include:

  1. Minimally Invasive Excision Surgery

Laparoscopic and robotic surgeries are considered the gold standard for treating endometriosis. This technique involves carefully removing endometriotic lesions while preserving healthy tissue and organs. Skilled surgeons can often perform complex procedures using minimally invasive techniques, leading to faster recovery and less scarring.

  1. Robotic-Assisted Surgery

Some specialists use robotic-assisted surgical systems to enhance precision and control during endometriosis excision. This technology can be particularly beneficial for complex cases or when operating in difficult-to-reach areas.

  1. Hormone Therapy

Advanced hormone therapies, including newer progestin-only options, can help manage symptoms in some cases. Specialists can tailor hormone treatments to patients’ unique needs and medical history.

  1. Integrative Approaches

Many top endometriosis centers in New York offer integrative care options, combining traditional medical treatments with complementary therapies like acupuncture, pelvic floor physical therapy, and nutritional counseling to address the multifaceted nature of endometriosis.

Fertility Preservation and Treatment

For women with endometriosis who hope to conceive, fertility preservation and treatment are crucial considerations. New York’s leading endometriosis specialists often work closely with reproductive endocrinologists to offer:

  1. Fertility assessments and counseling
  2. Egg freezing and fertility preservation options
  3. Assisted reproductive technologies like IVF
  4. Surgical interventions to improve fertility outcomes

By addressing both endometriosis and fertility concerns simultaneously, these integrated approaches can help maximize a woman’s chances of achieving a successful pregnancy.

Living with Endometriosis in New York: Endometriosis Support

Living with endometriosis can be isolating, but connecting with others who understand your experience can be incredibly empowering. New York offers several support groups and advocacy organizations for endometriosis patients, including:

  • Endometriosis Foundation of America
  • NYC Endometriosis Support Group

Additionally, you can find valuable information and resources on the iCareBetter website. Our blog, forum, and published articles offer significant insights about endometriosis and its specialists.

To adapt to city life with Endo, try flexible commuting options, consider an anti-inflammatory diet (easy with NYC’s healthy food options), and focus on gentle exercise like yoga or walks in Central Park. These lifestyle adjustments and community resources can make managing endometriosis in the city more accessible.

Empowering Your Endo Journey in the City of Dreams

Finding a top endometriosis specialist in New York is crucial to reclaiming your health and quality of life. With access to world-class medical care, innovative treatments, and supportive communities, women with endometriosis have more options than ever before. By arming yourself with knowledge, seeking expert care, and advocating for your needs, you can take control of your endometriosis journey and work towards a future free from debilitating pain and limitations. 

If you are struggling with endometriosis and seeking proper care, don’t navigate this journey alone! Visit iCareBetter to connect with top endometriosis specialists in New York who can provide personalized treatment options and support. Empower yourself with the knowledge and resources you need for better health—take the first step toward a brighter future today! 

Remember, every woman’s experience with endometriosis is unique, and finding the right specialist may take time. Don’t be discouraged if your first appointment doesn’t provide all the answers—perseverance and self-advocacy are keys to finding the care you deserve. With the right team by your side, relief and healing are possible, opening the door to a brighter, pain-free future.

References:

https://www.mountsinai.org/care/obgyn/services/endometriosis-pelvic-pain

https://www.volusonclub.net/empowered-womens-health/the-role-of-endometriosis-specialists-doctors-and-surgeons-in-treatment

https://www.dukehealth.org/treatments/obstetrics-and-gynecology/endometriosis-and-pelvic-pain

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How to Find an Expert Endometriosis Specialist?

The Endometriosis Enigma

For countless individuals grappling with the perplexing condition of endometriosis, the journey toward finding a knowledgeable and compassionate specialist can be an arduous one. This chronic disorder, characterized by the growth of endometrial-like tissue outside the uterus, often evades timely diagnosis and effective treatment. The debilitating symptoms, encompassing excruciating pelvic pain, heavy menstrual bleeding, and even infertility, can severely impact one’s quality of life.

Navigating the labyrinth of healthcare professionals can be a daunting task, especially when faced with the frustrating reality that many gynecologists lack the specialized training and expertise to accurately identify and manage endometriosis. The absence of a dedicated medical specialty solely focused on this condition further compounds the challenge.

The Pursuit of Expertise

Fortunately, amidst this landscape of uncertainty, a select group of medical professionals have dedicated their careers to unraveling the complexities of endometriosis. These esteemed authorities, often based in larger metropolitan areas or affiliated with teaching hospitals, have emerged as beacons of hope for those seeking relief from the relentless grip of this enigmatic condition.

However, the quest to locate these specialists can be akin to finding a needle in a haystack. With no official designation or certification process, the onus falls squarely on the patient to navigate the intricate web of resources and recommendations.

Leveraging Support Networks

One of the most invaluable resources in this arduous journey is the collective wisdom of endometriosis support groups and online communities. These platforms not only serve as a sanctuary for shared experiences but also as a treasure trove of insights, enabling individuals to tap into the collective knowledge of those who have walked the path before them.

By engaging with these support networks, patients can gain access to a wealth of information, including recommendations for reputable specialists, insights into their treatment approaches, and firsthand accounts of experiences with various healthcare providers.

Consulting Primary Care Physicians

While primary care physicians may not possess the specialized expertise required to treat endometriosis, they can serve as invaluable allies in the quest for specialized care. These healthcare professionals often maintain a network of referrals and can provide guidance on navigating the complexities of the healthcare system.

Harnessing Online Resources

In the digital age, the power of online resources cannot be understated. Organizations such as the Endometriosis Foundation of America and the American Society for Reproductive Medicine offer comprehensive databases and referral services, enabling patients to identify specialists in their vicinity who specialize in the diagnosis and treatment of endometriosis.

Additionally, endometriosis-focused blogs, forums, and social media platforms can serve as valuable repositories of information, providing insights into the experiences of others who have navigated similar journeys.

Vetting Potential Specialists

Once a list of potential specialists has been curated, the process of vetting and selecting the most suitable healthcare provider begins. This critical phase involves a multifaceted approach, encompassing both objective and subjective evaluations.

Key considerations include:

  • Expertise and Experience: Assessing the specialist’s specific training, certifications, and extensive experience in treating endometriosis, particularly in complex cases or those involving fertility challenges.
  • Treatment Approach: Evaluating the specialist’s philosophical alignment with your preferences and needs, whether it be a focus on medication, surgical interventions, or a holistic, multidisciplinary approach.
  • Collaborative Mindset: Determining the specialist’s willingness to engage in a collaborative partnership, valuing your input, addressing your concerns, and fostering an environment of open communication.
  • Compassion and Empathy: Gauging the specialist’s ability to exhibit genuine compassion, empathy, and understanding towards the unique challenges and experiences associated with endometriosis.
  • Reputation and Reviews: While acknowledging that reputation alone should not be the sole determinant, seeking insights from others who have experienced the specialist’s care can provide valuable context.

Embracing Second Opinions

In the realm of endometriosis care, the pursuit of a second opinion should be viewed not as a sign of doubt but rather as a proactive step toward ensuring the most comprehensive and personalized treatment plan. By consulting multiple specialists, patients can gain a broader perspective, compare treatment philosophies, and ultimately make an informed decision that aligns with their individual needs and goals.

Preparing for the Appointment

Once a specialist has been selected, thorough preparation is key to maximizing the value of the consultation. Gathering comprehensive medical records, documenting symptoms and their impact on daily life, and articulating specific concerns and questions can facilitate productive dialogue and enable the specialist to gain a holistic understanding of the patient’s unique circumstances.

Advocating for Yourself

Throughout this journey, it is imperative for individuals to embrace the role of an active advocate for their own health and well-being. While endometriosis specialists possess invaluable expertise, no one understands the nuances of one’s experiences better than the individual themselves.

Cultivating the confidence to voice concerns, ask probing questions, and respectfully challenge recommendations that do not align with personal beliefs or goals is an essential component of forging a truly collaborative partnership with a healthcare provider.

Embracing a Holistic Approach

While the pursuit of an endometriosis specialist is a critical step, it is essential to recognize that addressing this complex condition often requires a multidisciplinary, holistic approach. Incorporating complementary therapies, lifestyle modifications, and emotional support can enhance the effectiveness of medical interventions and promote overall well-being. By embracing a comprehensive and individualized treatment plan, patients can optimize their chances of achieving lasting relief and regaining control over their lives.

Perseverance and Resilience

The journey towards finding an endometriosis specialist is rarely a linear one. It may be punctuated by setbacks, disappointments, and moments of frustration. However, it is essential to cultivate a mindset of perseverance and resilience, recognizing that the ultimate goal – finding a compassionate and knowledgeable healthcare partner – is worth the effort.

By remaining steadfast in their pursuit, individuals can navigate the challenges with grace and determination, ultimately emerging victorious in their quest for comprehensive care and a better quality of life.

In conclusion, the path to finding an endometriosis specialist is a winding and often arduous one, but it is a journey that holds the promise of relief, understanding, and empowerment. By leveraging the collective wisdom of support networks, harnessing the power of online resources, and embracing a proactive and collaborative approach, individuals can navigate this quest with confidence and emerge victorious in their pursuit of comprehensive care.

REFERENCES:

https://www.endofound.org/preparing-to-see-a-doctor

https://www.everydayhealth.com/endometriosis/finding-endometriosis-expert-what-you-need-know

https://www.elanzawellness.com/post/how-to-find-an-endometriosis-specialist-in-the-us

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Understanding Neuroproliferative Vestibulodynia and the Connection with Endometriosis

A few weeks ago, we delved into the intricacies of vestibulodynia and its potential association with painful intercourse in individuals with endometriosis. We presented an overview of vestibulodynia subtypes in general and discussed one of the more common presentations we see in those with endometriosis – hormonally mediated vestibulodynia which in many is caused from the side effects of the birth control pill, which are offered as first line “treatments” for endometriosis. Today, we will focus on another subtype, neuroproliferative vestibulodynia (NPV), and the fascinating connections are are seeing in these two conditions, including the role of mast cells.  

If you missed our previous discussion on painful sex and vestibulodynia, you can find the detailed information here. 

Recent research endeavors have yielded valuable insights into the fundamental causes of these conditions, unveiling a shared mechanism involving neuroproliferation, characterized by an increase in nerve cells. Furthermore, an elevated presence of mast cells—integral components in immune function—has been observed both in endometriosis tissue and the vestibule of individuals diagnosed with neuroproliferative vestibulodynia (NPV).

Individuals diagnosed with NPV undergo a surgical procedure which is excised to remove the problematic tissue, sound familiar? 

This surgical approach has demonstrated notable success in alleviating pain for individuals affected by NPV. Dr. Paul Yong, an OBGYN, endometriosis surgeon, and researcher based in Canada, addressed the parallels between these two conditions during his presentation titled ‘Neuroproliferative Dyspareunia’ at the ISSWSH’s annual conference in March 2022. Dr. Yong’s insights laid the foundation for subsequent research, with Dr. Irwin Goldstein initiated further exploration earlier this year.  We were lucky enough to be able to speak directly with these two on our podcast iCarebetter: Endometriosis Unplugged, available on Spotify (linked here) and Apple Podcasts.

A Quick Overview

Vestibulodynia

Vestibulodynia is a condition characterized by pain in the vestibule, the area of tissue within the vulva that surrounds the opening of the vagina. This pain can be described as sharp, stinging, burning, or hypersensitive, and can occur spontaneously or be provoked by touch or pressure, and many people will report superficial dyspareunia (or pain upon insertion) which is not limited to penis in vagina sex. Vestibulodynia is a subcategory of a broader condition called vulvodynia, which refers to chronic pain in the vulva.

Endometriosis

On the other hand, endometriosis is a condition where tissue similar to the lining of the uterus grows outside the uterus, often causing pain and fertility issues. This condition can cause deep dyspareunia, or pain with deep vaginal penetration. Like vestibulodynia, the pain associated with endometriosis can be chronic and can significantly impact the quality of life.

The Concept of Neuroproliferative Dyspareunia

Both vestibulodynia and endometriosis can lead to pain during sexual intercourse and the term neuroproliferative dyspareunia, is in reference to the source of the pain.  Both tissues have been shown to have neuroproliferation, or increased growth, of nerve endings in the areas affected by these conditions and we are now seeing an aberrant amount of mast cells as well also contributing to inflammation. This overgrowth of nerves, and presence of excessive mast cells, can lead to heightened sensitivity and pain during vaginal penetration, both superficially, as well as deep.

Neuroproliferation in Vestibulodynia

In the case of vestibulodynia, research has shown that there are too many nerve endings in the vestibule tissue. This overgrowth of nerves, or neuroproliferation, is still under investigation. However, it is believed that this could be due to a congenital birth defect, with the excess nerve endings developing very early. There are two types of neuroproliferative vestibulodynia: primary (congenital) and secondary (acquired). In primary vestibulodynia, individuals have experienced pain their entire lives though usually identified shortly after menses or with first attempts at penetration (sex, tampons, speculum exams) while in secondary or acquired vestibulodynia, pain develops later in life usually after an event such as an allergic reaction, chronic yeast infections or other infection, and there has typically been a period of normalcy prior to these event. 

Neuroproliferation in Endometriosis

In endometriosis, nerve fibers have been found around endometriosis lesions in the pelvic peritoneum. These nerve fibers are more numerous in individuals with endometriosis compared to those without the condition. The increase in nerve fibers is believed to be driven by the immune response to infection or allergy, leading to nerve proliferation.

Symptoms of Neuroproliferative Vestibulodynia and Endometriosis

Vestibulodynia Symptoms

People with vestibulodynia typically experience pain at the entrance of the vagina, called the vestibule. This pain can be described in various ways, including as sharp, stinging, burning, or hypersensitive. This pain can also be classified by when it occurs, with provoked vestibulodynia referring to pain that occurs with touch or pressure, while unprovoked pain occurs spontaneously.

Endometriosis Symptoms

In endometriosis, the pain is typically experienced deeper within the pelvis, often during or after sexual intercourse. This deep dyspareunia can also be accompanied by other symptoms, such as painful periods (dysmenorrhea), painful bowel movements, and chronic pelvic pain to name a few. 

For more signs and symptoms, check out our blog Endometriosis Signs and Symptoms: Everything You Need to Know.

Causes of Neuroproliferative Vestibulodynia and Endometriosis

Causes of Vestibulodynia

The exact causes of vestibulodynia are still being investigated. However, research suggests that the overgrowth of nerves in the vestibule tissue could be triggered by signaling from immune cells in the tissue. This could be due to a congenital birth defect, resulting in excess nerve endings developing very early, or it could be an acquired condition, developing later in life possibly due to infection or allergy.

Causes of Endometriosis

The causes of endometriosis are also not fully understood though we have began to shift away from the narrative that it is caused by retrograde menstruation, and towards a genetic basis. We hope that in the future with new research, we will be able to fully understand the cause (or causes) and have optimal treatment methods to address the heterogeneity of this disease. 

You can read more about these theories in our blogs listed below:

  1. The History of Endometriosis: Unraveling the Theories and Advances [or lack thereof]
  2. Is Endometriosis Genetic? Understanding the Genetic Links in Endometriosis.

There has been limited research in the role of mast cells in endometriosis thus far, and Dr. Irwin Goldstein, MD has now successfully demonstrated in a case study of a patient with NPV, her endometriosis pathology also demonstrated similar findings, as well as a biopsy taken of her colon during a colonoscopy. 

Thank you to Paul Yong, MD for this information, here is a comparison of endometriosis and NPV and common mechanisms in each.

EndometriosisNPV
PrevalenceApprox 10%Approx 10%
DiagnosisHistological diagnosis(ectopic endometrial-like epithelium/stroma)Clinical diagnosis (but normal vestibular histology consists of epithelium/stroma)

NPV – mast cells and excessive nerve endings
Description of DyspareuniaDeep Superficial 
Nerve DensityIncreased local nerve density compared to controlsIncreased local nerve density compared to controls
NeutrophinsIncreased NGF expression by endometriosis stroma when higher nerve fibersIncreased NGF expression by immune cells in vestibulodynia in areas with more nerve fibers
InflammationIncreased IL-1b expression by endometriosis when higher nerve fibres

Endometriosis stromal cells, when stimulated by IL-1b, increase production of NGF and promote nerve fibre development in a PC12 2q13 polymorphism (adjacent to IL-1 family genes)

Mast cells

Tryptase
Increased IL-1b in tissues in vestibulodynia vs. controls; Not observed in another study (Eva)

Vestibular fibroblasts from patients with vestibulodynia expressed more IL-1b compared to external vulvar fibroblasts and to controlsIL-1b and IL-1R antagonist gene polymorphism

Mast cells

Tryptase

Heparanase

References

  1. Mwaura, A. N., Marshall, N., Anglesio, M. S., & Yong, P. J. (2023). Neuroproliferative dyspareunia in endometriosis and vestibulodynia. Sex Med Rev. https://doi.org/10.1093/sxmrev/qead033 
  2. Goldstein, S., Yee, A., & Goldstein, I. (2022). Severe Allergic, Inflammatory and Traumatic Reactions of the Vestibule Associated with Acquired Neuroproliferative Vestibulodynia. The Journal of Sexual Medicine, 19(8, Supplement 3), S3. https://doi.org/https://doi.org/10.1016/j.jsxm.2022.05.012

Bornstein, J., Goldstein, A. T., Stockdale, C. K., Bergeron, S., Pukall, C., Zolnoun, D., Coady, D., consensus vulvar pain terminology committee of the International Society for the Study of Vulvovaginal, D., International Society for the Study of Women’s Sexual, H., & International Pelvic Pain, S. (2016). 2015 ISSVD, ISSWSH, and IPPS Consensus Terminology and Classification of Persistent Vulvar Pain and Vulvodynia. J Sex Med, 13(4), 607-612. https://doi.org/10.1016/j.jsxm.2016.02.167

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Choosing Your Battle Against Endometriosis: Understanding Excision, Ablation, and Robotic Techniques

The gold standard for diagnosis of endometriosis, a chronic, debilitating condition impacting millions of women (XX), is minimally invasive surgery with histological confirmation. Due to advancements and understanding of the disease, we now recommend that surgical treatment of the lesions be performed at the same time as a diagnostic surgery. It is well understood and agreed upon that in order to obtain a biopsy, the tissue must be removed and excised for analysis but the type of surgical approach to address the lesions is not consistent among all practitioners. 

If you were to ask someone well versed in endometriosis such as an endometriosis excision surgeon or even a patient advocate who is well up to date on their understanding and research, you’d likely hear that excision surgery is the gold standard for treatment and the preferred approach is minimally invasive. However, there are still those who would provide a counterargument stating that there is a place for ablation, especially, according to some guidelines, in the pediatric and adolescent age group. Those who proffer minimally invasive excision surgery differ in opinion about the adequacy of older technology laparoscopy vs. the technical benefits of robotically assisted enhancements.  

This article aims to provide some insight as to the understanding and nuances behind these arguments, and the limitations in the current research, as well as provide a comprehensive guide on the different treatment approaches for endometriosis, including excision surgery, robotic surgery, and the role of ablation.

Understanding Endometriosis

Endometriosis is a heterogeneous, inflammatory condition where endometrial-like tissue is found throughout the body, typically in the abdominopelvic cavity. While some patients with endometriosis can remain asymptomatic, an estimated 35-50% experience severe pelvic pain, infertility, and other symptoms related to the location of the endometriosis lesions or implants.  Endo is intensely inflammatory and fibrogenic, which often creates huge anatomic distortion, causing infertility and pain.  Tackling endo surgically requires advanced skills for these reasons. 

Current and Future Treatment Approaches for Endometriosis

Today’s treatment options are largely limited to hormonal manipulation and surgery. According to various medical advisory organizations, medical therapies should be offered as first-line therapies to alleviate endometriosis symptoms and potentially treat the endo, and then surgical intervention becomes an option. Sometimes surgery is only offered when pain is not alleviated, potentially allowing the endometriosis and resulting fibrosis to grow.  

There is a strong counterargument to starting with medical/hormonal therapy, which is often initiated based on clinical symptoms and findings that suggest endometriosis may be present.  Leading with medical treatment, which can have significant and lasting side effects, means potentially injurious and ineffective treatment can be prescribed when in fact there is no endometriosis present. In addition, due to relative progesterone resistance, symptoms may be ameliorated but the aberrant endometriotic tissue is not usually eradicated.  Meanwhile, fibrosis from your body’s healing efforts continues to accumulate. Therefore, excision may be considered a cornerstone initial step to remove the macroscopically evident bulk of disease followed by potential preventive strategies to suppress any residual microscopic disease after the diagnosis is pathologically established.  

Excising all visible lesions, associated adhesions, and scarring or fibrosis, is thought to reduce disease recurrence, relieve pain, and enhance fertility rates. However, while this can provide long-term relief, it is not usually curative.   In complex endometriosis cases (stage III or IV according to the revised American Society for Reproductive Medicine classification), achieving the goal of safe and complete excision of visible lesions, especially using conventional laparoscopy can be technically challenging, and requires specialized training. 

While this article is not focused on other treatment options, keep in mind that holistic, nutritional, Eastern and natural approaches have a role in alleviating symptoms and, to a degree, can influence the course of endo as well.   

Future treatments on the horizon will go far beyond surgery and hormonal manipulation.  We already know that there are other molecular pathways that drive endo growth and these will eventually be effectively harnessed for diagnostics, monitoring, and treatment.  Some of these pathways can already be influenced by nutritional and other holistic methods. 

Excision Surgery for Endometriosis

Excision surgery, most often performed via laparoscopy or robotics, has largely replaced ablation and big incision surgery. There is general agreement that minimally invasive surgery is superior to big incision (laparotomy) type of surgery.  However, ablation is still commonly performed, partly because it is simply easier and requires far less skill.   

During excisional surgery, visible endometriosis lesions are removed, which studies have shown significantly reduces the rate of disease recurrence and associated pelvic pain.  However, not all studies clearly support excision over ablation.  Additional research is required to settle this question and this is very difficult to do because of the extremely wide variance of surgeon skill. Suffice it to say that publications by experts in excisional surgery seem to clearly support this technique over ablation. 

The technical aspects of laparoscopy and robotics, as well as the surgeon’s expertise, dexterity, surgical precision, coordination, and visualization limitations, can cause complications during surgical dissection to vary widely, particularly in severe endometriosis cases. For this reason, it is prudent that a surgeon trained in specialized excision techniques perform these surgeries to minimize complications as well as to ensure adequate removal of all visible lesions. 

Robotic Surgery for Endometriosis

Over the past fifteen years, robotically enhanced surgery has emerged as an additional tool that can help circumvent the technical challenges of conventional laparoscopy. It offers several advanced features, including 3-D and magnified visualization, wristed instruments, motion scaling, and ergonomic positioning for the surgeon. But what does this mean in terms of benefits to you as the patient? 

First, 3-D technology and magnified view mean that the surgeon can see every little detail which conventional 2-dimensional laparoscopy may not allow the surgeon to discriminate, even using so-called “near contact laparoscopy.”  This is because magnified 3-D allows depth perception so that even sub-millimeter irregularities on the peritoneal surface can be identified. Also, in a difficult case with distorted anatomy, it allows the surgeon to better avoid damaging adjacent organs, like the bowel and ureters.  

Second, the instruments at the tips are “wristed”, meaning they behave like tiny human hands.  Conventional laparoscopic instruments are straight sticks with scissors or graspers at the end, which can limit options in tight spaces to cut, push, pull and tear. Robotic wristed instruments can result in more precise motions to excise endo in difficult places and avoid bleeding and other complications.  

Third, the fulcrum of activity during conventional laparoscopy is the abdominal wall.  When the surgeon moves the instruments, because of their straight nature, the abdominal wall is constantly being tweaked and traumatized. In contradistinction, since the surgical activity fulcrum is at the instrument tips during robotic surgery, there is less ongoing trauma to the abdominal wall.  This results in less abdominal wall pain over the first hours and days after surgery. 

Fourth, the risk of needing to convert to a big incision because the surgery is not going well using minimally invasive surgery is higher for laparoscopy compared to robotics.  So, you have twice the risk of waking up with a much bigger incision during a planned conventional laparoscopy.  Big incisions are prone to hernia and infection, not to mention more painful during recovery.  Generally, the more difficult the surgery the higher the conversion risk. Unfortunately, it is not possible with endometriosis (due to its intensely inflammatory and scarring nature) to accurately predict what is going to be an easy vs difficult surgery. This is truly a case of an ounce of prevention (optimal preparedness) being worth a pound of cure (getting caught with inadequate instruments for the job and then trying to scramble and fix it).  

Research Comparing Robotic Surgery with Conventional Laparoscopy

Several studies have been conducted to compare the efficacy of robotic surgery and conventional laparoscopy in treating endometriosis. A meta-analysis by Chen et al. evaluated the safety and efficacy of robotic surgery for treating advanced-stage endometriosis. The study concluded that while robotic surgery was safe and efficient, it was also time-consuming and incurred higher costs compared to conventional laparoscopy.  Studies like this are hard to interpret because it is not possible to know the real skill base of the surgeons involved, which means conclusions about costs and efficiencies are suspect. Also, it’s important to keep in mind that from the patient’s perspective, this cost is irrelevant. The costs are almost all absorbed by the hospital or surgery center and not directly passed on to the patient. 

The bottom line is that an experienced laparoscopic excision surgeon will likely be able to get the right surgery done safely in straightforward and moderately complicated cases.  A robotic surgeon should be vested enough in the newer technology (i.e., does a lot of robotic surgery, if not all robotics) to realize a difference.  In other words, in most cases, the surgeon is the most important part.  However, due to the superior technology, a highly skilled robotic surgeon will likely complete a complicated case safely (e.g., Stage III or IV with multiple prior surgeries), without conversion to a big incision, more often than a highly skilled laparoscopic surgeon, due to the limitations of inferior technology.  

From a practical perspective, you can experience/simulate the difference yourself between 2-D and 3-D vision or between straight stick laparoscopic surgery vs wristed robotics technology.  Wear a patch or tape one eye closed and immobilize your elbows and wrists with splints and tape, leaving only two fingers to grasp things with, and go about your daily business (NOTE: please don’t do this without someone assisting you because you will find that you misjudge distances and are unable to carry out tasks safely).  Can you adjust to this handicap over time?  Of course, as can a surgeon.  However, it is certainly not optimal to avoid using your wrists and both eyes if you have a choice. 

Robotic Surgery for Deep Infiltrating Endometriosis (DIE) and Extragential Endometriosis

DIE is a severe form of endometriosis characterized by endometrial tissue growth more than 5mm deep into the peritoneum. Approximately 40% of patients with endometriosis suffer from DIE. DIE can cause dense adhesions and fibrosis, distorting pelvic structures, including genital organs, the bowel, and the urinary tract, causing severe pelvic pain. There is also an overlap of molecular abnormality markers (primarily ARID1A mutations) between DIE and clear cell cancer arising from endometriosis.  This has led researchers to suggest that the DIE  type of endo is pre-malignant.  Removing DIE requires an even higher skill base, and robotics can facilitate far safer and complete surgery for the reasons noted above.  

Ablation for Endometriosis

Let’s consider the technique of ablation, as opposed to excision, in a little more detail.  This procedure involves destroying endometrial lesions using heat or laser energy rather than removing them. This method was introduced in the 70’s but has significant limitations. The issue with ablation is that while it may be adequate for very superficial disease, it does not remove the lesion, and more importantly, you cannot determine how deep the lesion goes by burning the surface and not carefully excising the lesion. Ultimately this can leave behind endometriosis which can continue to wreak havoc on the body.  In addition, the more trauma to your body (ablation via thermal damage is more traumatic than precise excision), the more your body resorts to scarring and fibrosis for healing.  This fibrosis can continue to cause pain and lead to complications like urinary system obstruction.  Finally, the ureters ( tubes that connect your kidneys to your bladder) and bowel are often right underneath endo lesions.  These are thin, delicate structures that are in danger of damage by thermal spread.  If they leak due to damage this can lead to emergency surgery, colostomy (wearing a bag for stool on your belly), urinary reconstruction and even death.  Therefore, it should only be done in circumstances where the risk is low, such as the eradication of tiny endo superficial ovarian lesions when all else (including endometriomas) has been excised.   

Conclusion

Regardless of the approach to excision – robotic or conventional laparoscopy, the need for better research utilizing highly skilled surgeons performing wide-excision is needed to definitively demonstrate the superior overall benefits compared to ablation surgeries. As of now, research is relatively sparse due to flaws in the research process discussed in this article and many more statistical reasons. Again, we are burdened by a lack of superlative surgeons and this is not a surgery for less skilled surgeons to dabble in, whether it be in research study participation or patient care.  As a result, the lack of absolute positive outcome superiority currently impacts the availability and insurance reimbursement for those seeking a safe and effective excision surgery.   At this time, since everyone’s situation is different, the best course of action is to get an expert opinion from the best endometriosis specialist you can find.  

Looking for a specialist? Check out our related blogs:

N.B. The above is based on a combination of published data and the author-surgeon’s personal experience, spanning over three decades, using both laparoscopy and robotic surgery for advanced excisional surgery, inclusive of advanced endometriosis and radical cancer excision. 

References

  1. Pundir, J., Omanwa, K., Kovoor, E., Pundir, V., Lancaster, G., & Barton-Smith, P. (2017). Laparoscopic Excision Versus Ablation for Endometriosis-associated Pain: An Updated Systematic Review and Meta-analysis. J Minim Invasive Gynecol, 24(5), 747-756. https://doi.org/10.1016/j.jmig.2017.04.008 
  2. Kang, J.-H., & Kim, T.-J. (2020). The role of robotic surgery for endometriosis. Gynecologic Robotic Surgery, 1(2), 36-49. https://doi.org/10.36637/grs.2020.00045 
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20 Signs and Symptoms of Endometriosis

What are the Symptoms of Endometriosis?

Endometriosis symptoms can vary in intensity and don’t always correlate with the extent of the disease. Some women may have minimal symptoms, while others experience significant discomfort. If you experience these symptoms, particularly if they worsen during your menstrual cycle, it’s important to consult a healthcare provider for proper diagnosis and treatment options.

Endometriosis is a chronic, sometimes debilitating condition. Endometriosis means tissue similar to the lining of the uterus (the endometrium) grows outside the uterus. It affects 1 in 10 women between 15-50 and other genders. While there is no cure for endometriosis, understanding the common and uncommon signs and symptoms can help you get an earlier diagnosis and manage your symptoms more effectively.

20 Symptoms of Endometriosis:

1. Painful Periods

one of the common symptoms of endometriosis is period pain

The most common endometriosis symptom is pain during or around periods ranging from mild to extreme. This pain may start before or after your period begins. It may be localized in the pelvic region or spread to other parts of your body. The pain may also become worse over time if endometriosis is left untreated. 

2. Pain During Intercourse

Intercourse may be uncomfortable or even painful for individuals with endometriosis, a condition that can also lead to endometriosis pain after orgasm. This specific type of discomfort is known as dyspareunia, which often occurs because of an endometriosis mass in the pelvis and around the vagina or due to the adhesions of endometriosis within the pelvic region. Adhesions, which form when scar tissue causes organs to bind together, prevent these organs from moving freely against each other as they normally would during intercourse, contributing to the pain experienced.

3. Heavy Bleeding

Women with endometriosis often experience heavy bleeding during their periods. Heavy bleeding means they must change their pads or tampons more frequently than normal—as often as every hour—or pass large blood clots during their menstrual cycle. Some women also experience spotting throughout their cycles and bleeding between cycles due to endometriosis-related changes in hormones. This heavy bleeding or spotting can be a sign of adenomyosis, which is very common in endometriosis patients.

4. Fertility Issues

Endometriosis and Infertility are closely connected, as endometriosis can lead to fertility challenges for some women. The inflammation, adhesion, or mass effect of endometriosis lesions on key reproductive organs like the ovaries, fallopian tubes, and the uterus can result in infertility. The struggle with endometriosis and infertility can evoke a spectrum of emotions, including anger, sadness, and frustration, as individuals face the complex challenges associated with these conditions.

5. Fatigue

Fatigue, characterized by a lack of energy and motivation, stands as one of the most prevalent symptoms associated with fatigue and endometriosis.

Are you experiencing symptoms of fatigue and endometriosis? It’s crucial to consult with an expert in the field. Reach out to:

Dr. Andrea Vidali , Endometriosis Specialist and Reproductive Endocrinologist

Dr. Steven Vasilev , Endometriosis Specialist, Integrative Medicine Specialist

6. Cramps

It might start before a period and last several days. Patients describe it as stabbing, searing, debilitating pain associated with endometriosis and stomach cramps.

7. Bloating

Endo Belly is a term used to describe the severe bloating experienced by individuals with endometriosis. This condition results in the abdomen becoming swollen, often causing discomfort and pain. Bloating is a complaint in 82.8% of patients with endometriosis, and endo belly is one of the most common manifestations. Inflammation, bacterial, immunologic, and hormonal changes might be the likely reasons for endo belly.

8. Vomiting

Vomiting might result from endometriosis’s mass effect and hormones on the gastrointestinal tract. It could also be secondary to severe pain and discomfort.

9. Nausea

Severe pain and cramps can lead to nausea. Also, with heavy bleeding, you may feel lightheaded or dizzy during your periods which can lead to nausea.

10. Constipation

Generally, constipation means the passage of small amounts of hard, dry stool, usually fewer than three times a week.

Chronic constipation in women with endometriosis varies from 12% to 85%. Constipation can result from multiple causes. These causes for constipation include inflammation, scar tissue, damage to pelvic autonomic nerves, pelvic floor muscle dysfunctions, and hypertonic (too much muscle tone) pelvic floor muscles. 

11. Diarrhea

Diarrhea means loose, watery stools that occur more frequently than usual. Endometriosis and diarrhea is most likely related to high patient anxiety and hormonal imbalances such as increased prostaglandins.

12. Rectal Bleeding

Deep infiltrating endometriosis of the colon can cause cyclic or midcycle rectal bleeding.

13. Pain with Bowel Movement

Bowel endometriosis, particularly deep infiltrating endometriosis of the colon, can lead to painful bowel movements. Additionally, lesions located behind the rectum or anus can similarly result in painful bowel movements, contributing to the discomfort associated with bowel endometriosis.

14. Rectal Fullness

Deep infiltrating endometriosis of the colon can cause the feeling of rectal fullness. Similarly, lesions behind the rectum or anus can cause rectal fullness.

15. Blood in Urine

Deep endometriosis lesions in the bladder and ureter can cause bloody urine during the period or off cycle.

16. Pain with Urination

It is also known as “dysuria.” Deep infiltrating endometriosis of the bladder can cause pain with urination (dysuria).

17. Excessive Urination

It is also known as “frequency.” Deep infiltrating endometriosis of the bladder can cause excessive urination, AKA frequency.

18. Flank Pain

Endometriosis lesions impacting kidneys and ureters can lead to pain in the flank. Also, other pelvic sidewall lesions can have similar flank pain.

19. Back Pain

Low back pain can be present due to the direct impact of endometriosis lesions on lumbosacral bones or nerve roots. Some other explanations of this pain include referral pain of visceral pelvic pain, hypersensitization, and adhesion in the pelvic area that impacts low back joints.

20. Leg Pain

Leg pain occurs due to nerve inflammation or hypersensitization. Nerve inflammation happens due to endometriosis covering nerves such as the sciatic nerve. Another reason for nerve inflammation is the presence of endometriosis in distant places, such as ovaries and pelvic side walls, that compress and inflame nerves.

Other Common Symptoms of Endometriosis:

Ovarian Mass

Endometriosis of ovaries can result in endometrioma. An ovarian endometrioma is a cyst that contains endometriosis tissue and a thick, brown, tar-like fluid. Some may call it a “chocolate cyst.” It can grow to 10-15 cm and present with a mass in the abdomen.

Postcoital Bleeding

Bleeding after sex, known as postcoital bleeding, can result from endometriosis lesions in the uterine cervix. With penetration, the endometriosis tissue on the cervix becomes irritated and wounded and starts bleeding.

Recognizing Signs of Endometriosis: Why Early Diagnosis Matters

There are many other signs and endometriosis symptoms associated with endometriosis, including shortness of breath, headaches, depression, and anxiety. Suppose you experience any individual or combination of these symptoms regularly. In that case, you must seek medical advice from your doctor so that they can properly diagnose and treat your condition accordingly. An early diagnosis can help you manage your symptoms more effectively, so don’t hesitate to speak with your doctor if you think you suffer from this condition.

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Does Endometriosis Cause Infertility? Covering the Basics

Learn More About the Connections Between Endometriosis and Infertility

An endometriosis (endo) diagnosis can be a frightening thing. Very frightening. While this inflammatory condition can be binary or non-binary, women of childbearing age are prone to issues with reproduction due to endo. So does endometriosis cause infertility? Keep reading as I break down the basics of this topic. In this comprehensive guide, I will delve into the complex interplay between endometriosis and fertility, exploring the condition’s impact, treatment options, and strategies to overcome potential obstacles on the journey to parenthood.  I will also discuss the emotional impact of this condition on patients.

What is Endometriosis

Endometriosis is a chronic inflammatory condition. In this disease, endometrial-like lesions implant on tissues and organs throughout the abdomen and pelvis, even elsewhere in the body! These lesions contain glands and stroma, similar to the endometrium (the tissue that lines the uterine walls), causing chronic inflammatory reactions. 

Endometriosis lesions produce many substances and even make their own estrogen, which, as a result, causes a variety of issues locally and systemically. Pain is one of the most common symptoms, though silent endo exists as well. Please continue reading this article to learn more about endometriosis.

Endometriosis and Fertility: Exploring the Connection

While endometriosis does not automatically equate to infertility, there is a well-documented association between the two. Approximately 30% to 50% of individuals with endometriosis experience fertility challenges, though the reasons behind this link are not fully understood. Several potential mechanisms have been proposed:

  1. Anatomical Distortions: Endometriosis can cause physical distortions in the reproductive anatomy, leading to scarring, adhesions, and obstructions in the fallopian tubes or ovaries, hindering the fertilization process.
  2. Inflammatory Response: The lesions can trigger an inflammatory response, creating an inhospitable environment for fertilization and implantation.
  3. Hormonal Imbalances: Endometriosis may disrupt the delicate hormonal balance required for ovulation and implantation, potentially impacting fertility.
  4. Egg Quality: Some research suggests that endometriosis may adversely affect egg quality, further complicating the conception process.

Despite these potential challenges, it’s important to note that more than 70% of individuals with mild to moderate endometriosis can conceive naturally, offering hope for those seeking to start a family.

What Happens When Endometriosis Does Cause Infertility?

It can. 25 to 50% of women with infertility have endometriosis, and 30 to 50% of women with endometriosis have infertility. However, it is very encouraging to know that most women with endometriosis can become pregnant. 

This statistic is significant. Many younger women with this disorder feel psychological effects due to the possibility of not being able to have kids. Not all patients carry this sentiment. Growing numbers of people do not want to have children. However, for those who do, these thoughts and emotions about fertility can be devastating. Then, endometriosis patients who do conceive often worry about the pregnancy and subsequent delivery of the baby.

Other Data on Endometriosis and Reproduction

Studies have also demonstrated that the enzyme aromatase may also play a role in endometriosis and infertility. There is an abnormally high level of this enzyme in the endometrium and endometriosis lesions in patients with endometriosis. In the uterus, this enzyme may affect both natural endometrial development and its receptivity for the implantation of the fetus.

Progesterone is another hormone that may play a role in implantation failure. Resistance to this enzyme can affect reproduction, as it is necessary for a normal pregnancy. In some studies, progesterone receptors displayed abnormalities and caused dysregulation in the endometrial layer of the uterus in patients with endometriosis. Levels of progesterone should increase with pregnancy, but with endometriosis, this process is delayed and can cause an unopposed estrogen state that cannot sustain fertility.

Diagnosing Endometriosis: A Multifaceted Approach

Diagnosing endometriosis can be a complex process, as the symptoms can mimic those of other conditions. The diagnostic journey often begins with a physical examination and an evaluation of the individual’s medical history. If endometriosis is suspected, additional tests may be recommended, such as:

  1. Ultrasound: An abdominal or transvaginal ultrasound can help identify cysts (endometriomas), possibly endometriosis lesions (this is not common but an up-and-coming area of research), as well as the potential impact on the organs themselves or other abnormalities in the reproductive organs.
  2. Laparoscopy: Considered the gold standard for diagnosing endometriosis, a laparoscopy involves a minimally invasive surgical procedure where a small camera is inserted into the abdomen, allowing the surgeon to visually inspect the pelvic organs and take tissue samples if necessary.

While the severity of endometriosis is often classified into stages (minimal, mild, moderate, or severe) based on the extent and location of the endometrial growths, it’s important to note that the stage does not necessarily correlate with the intensity of symptoms or the degree of fertility challenges.

Managing Endometriosis: A Multidisciplinary Approach

The management of endometriosis typically involves a multidisciplinary approach, combining medical and surgical interventions tailored to the individual’s unique circumstances and fertility goals. Treatment options may include:

  1. Pain Management: Over-the-counter or prescription pain medications, such as non-steroidal anti-inflammatory drugs (NSAIDs) or hormonal contraceptives, can help alleviate the discomfort associated with endometriosis.
  2. Hormone Therapy: Hormonal treatments, such as birth control pills, progestin-only therapy, or gonadotropin-releasing hormone (GnRH) agonists, may have some impact on suppressing the growth of endometriosis and managing symptoms, though these options are only short-term while on the medications and can have some serious side effects.
  3. Surgery: Laparoscopic or robotic surgery is recommended to remove endometriosis, scar tissue, or cysts, potentially improving fertility outcomes.
  4. Assisted Reproductive Technologies (ART): In cases where natural conception remains challenging, assisted reproductive technologies like in vitro fertilization (IVF) or intrauterine insemination (IUI) may be recommended.

It’s crucial to work closely with a multidisciplinary team, including reproductive endocrinologists, gynecologists, and fertility specialists, to develop a personalized treatment plan that addresses both the management of endometriosis symptoms and the individual’s fertility goals.

Dietary and Lifestyle Considerations

While there is no definitive evidence that specific dietary or lifestyle changes can cure endometriosis or improve fertility outcomes, maintaining a healthy lifestyle can contribute to overall well-being and potentially alleviate some symptoms. Recommendations may include:

  1. Balanced Diet: Consuming a diet rich in fresh fruits, and vegetables, minimizing grains, especially gluten, and lean proteins can provide essential nutrients and support overall health.
  2. Exercise: Regular physical activity, such as low-impact exercises like walking or swimming, can help manage stress and promote overall well-being.
  3. Stress Management: Engaging in stress-reducing activities like meditation, yoga, or deep breathing exercises can help promote relaxation and reduce the impact of stress on fertility.
  4. Supplements: While the evidence is limited, some individuals report benefits from taking supplements for pain relief, reducing inflammation, and improving their quality of life.

It’s essential to consult with a healthcare professional before making significant dietary or lifestyle changes, especially if you are undergoing fertility treatments or considering assisted reproductive technologies.

Endometriosis and Pregnancy: Potential Complications

While endometriosis does not necessarily preclude a successful pregnancy, it’s important to be aware of potential complications that may arise. Some of the risks associated with endometriosis during pregnancy include:

  1. Placenta Previa: Endometriosis may increase the risk of placenta previa, a condition where the placenta partially or completely covers the cervix, potentially leading to bleeding and complications during pregnancy or delivery.
  2. Miscarriage: Research findings on the link between endometriosis and miscarriage have been mixed, with some studies suggesting an increased risk while others found no significant association.
  3. Ectopic Pregnancy: Endometriosis may increase the risk of ectopic pregnancy, where the fertilized egg implants outside the uterus, typically in the fallopian tube.

It’s essential to work closely with your healthcare provider to monitor and manage any potential complications that may arise during pregnancy if you have endometriosis.

Mental Well-Being and Psychological Impact of Fertility Treatment for Endo Patients

Living with endometriosis can be a challenging and emotionally taxing experience, particularly for those struggling with fertility issues. The physical pain, emotional distress, and potential financial burdens associated with treatment can take a toll on an individual’s mental well-being. It’s crucial to prioritize self-care and seek support from mental health professionals, support groups, or counseling services if needed.

Furthermore, you and your partner can do these things to help prepare for these possible feelings:

  • Prepare and be ready for the emotional journey ahead.
  • Cope with grief and loss associated with unsuccessful prior attempts or miscarriages.
  • Develop strategies for coping with the news of other people’s births and pregnancies.
  • Keep the communication lines between you and your partner open and discuss feelings throughout the entire process.

Endometriosis and Fertility: Navigating the Journey

The path to parenthood for individuals with endometriosis can be challenging, but it’s important to remember that fertility challenges are not insurmountable. By working closely with a multidisciplinary team of healthcare professionals, exploring various treatment options, and maintaining a positive outlook, many individuals with endometriosis can achieve their dream of starting a family.

It’s crucial to be proactive in seeking support and guidance from healthcare providers, as well as accessing resources and support networks specifically designed for those navigating endometriosis and fertility challenges. Organizations like the American Society for Reproductive Medicine (ASRM) and Endometriosis UK offer valuable information, resources, and advocacy support for individuals on this journey.

While endometriosis may present obstacles, embracing a comprehensive approach that addresses both the condition and fertility goals can increase the chances of a successful outcome. With perseverance, the right medical support, and a commitment to self-care, the dream of parenthood can become a reality for many individuals with endometriosis.

REFERENCES

https://www.reproductivefacts.org/news-and-publications/fact-sheets-and-infographics/endometriosis-does-it-cause-infertility

https://www.pennmedicine.org/updates/blogs/fertility-blog/2016/august/endometriosis-and-fertility

https://www.brighamandwomens.org/obgyn/infertility-reproductive-surgery/endometriosis/endometriosis-and-fertility

https://www.tommys.org/pregnancy-information/planning-a-pregnancy/fertility-and-causes-of-infertility/how-does-endometriosis-affect-fertility

https://www.endometriosis-uk.org/endometriosis-fertility-and-pregnanc

Updated: August 9, 2024

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Find Endometriosis Specialists for the Best Possible Outcomes

Why You Need an OB-GYN Who Specializes in Endometriosis

Endometriosis is common (affecting nearly 190 million women worldwide) but poorly understood by many medical professionals. It’s hard to find endometriosis specialists who have completed advanced training. With the proper endo specialist, medical treatment or surgery can lessen your pain, improve your quality of life, and manage complications.

Endometriosis is a chronic pain condition that affects 10-15% of women of reproductive age. It causes painful periods, bleeding between periods, pain during sexual intercourse, and discomfort when passing urine or feces. Despite causing chronic pelvic pain, many medical professionals have a poor understanding of the condition.

In this article, we will look into what endometriosis is and explore how to improve diagnosis, treatment, and outcome factors.

What is Endometriosis?

Endometriosis affects menstruating women and girls and some women post-hysterectomy or post-menopause. The condition also can affect transgender men and non-binary individuals. Endometriosis affects roughly 190 million people worldwide, with immune, genetic and hormonal factors all likely to be at play. 

To understand Endometriosis, we first need to understand the endometrium or lining of the uterus.

The Endometrium

A large proportion of the endometrium is stromal cells. Stromal cells regulate cell growth and change during the menstrual cycle.

Endometrial glands line the endometrium. During the menstrual cycle, they widen in response to greater blood flow.

Each cycle, stromal cells, and endometrial glands slough off as part of menstruation.

Endometriosis Lesions

The presence of endometrium-like cells found outside the uterus causes the classic endometriosis symptoms. Discourse exists, but scientists have concluded a genetic basis to the cells’ presence, with endometrium-like cells migrating inappropriately during embryogenesis.

Endometriotic lesions can be in the ovaries, uterine ligaments, fallopian tubes, and pouch of Douglas (the space between the uterus and rectum). In some, lesions are present outside the pelvic cavity. Locations include the bowel, urinary tract wall, diaphragm, lungs, abdomen, and pericardium (the sack around the heart).

The endometrial-like tissue responds to the natural cycle of hormones and also produces some hormones by itself. This tissue has cycles of growth and bleeding. 

Whereas menstrual blood in the uterus leaves the body via the vagina, the blood and tissues cannot escape from endometriosis lesions. This trapped cells and tissue leads to the painful processes of inflammation, adhesions, and scarring.

What does it feel like to have Endometriosis?

Although pain is the most common complaint, Endometriosis causes a wide range of symptoms, including:

  • Painful periods
  • Heavy periods (menorrhagia)
  • Vaginal bleeding between periods
  • Pain on passing urine or feces
  • Bowel symptoms include bloating, constipation, diarrhea, or bleeding from the bowel
  • Pain during intercourse
  • Tiredness
  • Depression
  • Infertility.

Social and Emotional Effects

Severe pain can interrupt daily life for many patients. This interruption may include missing school, taking days off work, or being unable to socialize. A study in 2020 found that in over half of women, the pain had reduced their professional, physical, and sexual activity. 

Endometriosis is associated with low mood. 15% of women are diagnosed with depression, with an average age at diagnosis of 22. 

Infertility

Infertility can be the only symptom of Endometriosis for some women. Around 30-50% of patients cannot get pregnant owing to inflammation, pelvic adhesions, blockage of the fallopian tubes, and changes to the pelvic anatomy.

Other Symptoms

Additional symptoms are dependent on the location of endometriosis lesions. For example, an endometriotic lesion in the lung could cause breathlessness or chest pain. A study of over 2000 patients found that endometriotic nodules caused leg and buttock pain, as well as numbness, similar to sciatic pain. 

Misdiagnosis and incorrect management are therefore common for women with symptoms that are not classic to pelvic endometriotic lesions. 

Endometriosis Myths

The average delay in the diagnosis of Endometriosis is more than seven years, leading to “unnecessary suffering and reduced quality of life.” This delay leads many people to the internet to conduct their own research before and during diagnosis. However, the internet is awash with myths.  

The importance of educating yourself via a reputable source such as iCareBetter cannot be understated.  

Find Endometriosis Specialists for Appropriate Diagnosis & Treatment 

The widespread misunderstanding of Endometriosis hinders its diagnosis and treatment. The inappropriate investigation, treatment with analgesics, or hormonal suppression do little to manage the cause while delaying diagnosis. Women who felt they were not listened to nor understood by doctors have described frustration, anger, annoyance, and sadness.

Reassuringly, appropriate diagnosis and treatment can lead to significant improvements in pain. This is precisely why it is crucial to find an endometriosis specialist. Only highly specialized surgeons with a comprehensive team can perform a thorough excision to remove endometriotic lesions, including extra-pelvic locations. Complete removal can significantly improve overall outcomes, including relief from pain and increased quality of life.

iCareBetter Endometriosis Care

iCareBetter is a platform that connects patients with experts in endometriosis care. At iCareBetter, patients have access to surgeons who have completed advanced training. These professionals have shown expertise in the diagnosis and treatment of complex Endometriosis. iCareBetter utilizes a transparent and unbiased system to ensure that only doctors with proven advanced excision skills and a comprehensive care team can be on their surgeons’ list.

Patients can select their surgeon based on their specific symptoms. This empowers patients to consult a doctor who truly understands the complexity of their condition. Patients can access specialists for endometriosis in the pelvis, bowels, bladder, thorax, heart, or diaphragm. They also can find help with infertility issues.

A highly specialized endo surgeon will take a holistic approach to treatment. This holistic approach includes managing secondary comorbidities such as infertility, even in stage III and IV disease patients. 

At iCareBetter, patients can also access expert physical therapists who understand the condition. Working with a physical therapist gives access to myofascial release techniques, visceral mobilization, and the tools to manage a susceptible nervous system for better pain management.

Team-based expert care improves post-operative outcomes. For some iCareBetter doctors, post-treatment reports of satisfactory pain relief could be over 80%, with less than 20% of women requiring subsequent pelvic surgery. Moreover, many patients see reduced pain relief requirements post-recovery.

Standards of excellence, such as those endorsed by iCareBetter, must become a driving force behind treatment protocols for Endometriosis. Women should no longer shoulder the pain and reduced quality of life associated with substandard care.

Conclusion

Endometriosis occurs due to the presence of endometrium-like cells found outside the uterus. The resulting inflammation, adhesions, and scarring can cause severe pain and symptoms related to the location of the lesions. By connecting patients with expert surgeons in endometriosis care, iCareBetter empowers patients to access the care leading to better outcomes. Advanced surgical excision, physical therapy, and an expert team-based approach can reduce pain, as well as skillfully manage secondary complications.
Find endometriosis specialists today.

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7 Ways to Prepare For First Endometriosis Specialist Appointment

Diagnosis. Treatment. Surgery. Many Topics May Be Discussed At Your Visit

An endometriosis specialist appointment is not something you do every day (although sometimes it might feel like all day while you’re waiting there). However, the time you get to talk with the doctor may be pretty short. During that moment of consultation with the endometriosis (endo) specialist, you might feel brain fogged or bombarded. Whether it’s the diagnosis, treatment, surgery, pain management, or an endometriosis symptom you want to bring up, it’s easy to forget an essential topic while you’re there.

To make the most out of your initial endometriosis specialist appointment with an endometriosis specialist, we’ve made a list of seven ways you can prepare for the visit. First, we will give a short description of what endometriosis is. 

What’s Endometriosis?

Endometriosis is a female medical disorder in which tissue similar to the endometrium (tissue that lines the walls of the uterus) grows outside the uterus. This endometriosis tissue can grow on the surface of the uterus, ovaries, intestines, fallopian tubes, bladder, or other organs in the body.

During menstruation, this tissue releases blood, and it sloughs off. However, this blood and tissue often remain trapped with no way to escape the body. This increased pressure can result in moderate to severe pain, among other symptoms. If you want to learn more about endometriosis and get a general background on the condition, read our article, “Endometriosis 101: Covering the Basics.”

Why You Are Here

People of various ages and demographics are subject to this often debilitating inflammatory pelvic disorder. Whether you have confirmed the diagnosis of endometriosis or if you need surgery to verify its presence and remove lesions – these suggestions can help you prepare for the endometriosis specialist appointment. There are many stages of endometriosis. Whether you’ve got into a specialist early on your journey or later, the important thing is that you are here now – exploring treatment options.

7 Ways to Prepare for Endometriosis Specialist Appointment

Once you have found an experienced endometriosis specialist, it’s essential to prepare yourself for the doctor’s appointment ahead of time. There is no concrete test to diagnose endometriosis (outside of surgery). Therefore, it’s imperative to have a solid understanding of the signs and symptoms of endo and detailed accounts of your own experience ready. Simple things such as medical records or journals that list all your endometriosis symptoms are a vital arsenal that will help you and your doctor determine your treatment plan. 

1. Gather Your Records. 

Unfortunately, most people with endometriosis have had many doctor appointments before seeing an endometriosis specialist. Therefore, you should have some medical records for them to review during your first appointment with an endo specialist. Gather everything from your regular medical history from your general practitioner to your OB/GYN records, testing, imaging, blood work, etc. Even if you think the particular doctor appointment or medical history is insignificant, you might be surprised by the various conditions linked to endometriosis. Bring it all. This information could play a vital role in your endometriosis treatment. 

2. Keep a Journal of Endometriosis Symptoms/Pain.

Type of Pain Associated with Endometriosis

Write down all the possible endo signs and symptoms you’ve had leading up to the doctor’s appointment. If you get a visit scheduled, and it’s a couple of weeks out, start the journal at that time, but also include the signs and symptoms you’ve experienced leading up to that point. Then, from that date until your appointment, write down all the different types of symptoms you experience. Include everything, even if you don’t think it’s relevant, like colds, headaches, stomach issues, shortness of breath, chest pain, etc. Also, be sure to include your emotions and feelings because endometriosis can significantly impact mental health and can lead to conditions such as depression and anxiety. Emotions and mental health are essential as you might want to include a counselor as part of your holistic endometriosis treatment team.

3. Bring This Printable Guide.

At endometriosis.org, they’ve created a convenient guide that can help you describe your symptoms and know what to ask your endometriosis specialist. Click here for the PDF. Please print it out and answer all the questions. Bring this with you to your doctor’s appointment to help specifically describe your endometriosis pain and other symptoms. 

4. Take All Your Medications With You. 

The importance of this cannot be understated. Even if you have a medication reconciliation (also known as a “med rec” for short) from your doctor, it’s important to realize those are not always up-to-date with everything you take. This inconsistency is especially true if you are on medications from multiple specialists or take supplements as well. The best way for your endo specialist to have a complete picture of all the medicines you are currently taking is by bringing them with you to the doctor’s appointment. You should include any supplements or over-the-counter medications. Bring in the physical bottles along with any medication history records.

5. Prepare Yourself Mentally. 

Go into the appointment with the bold mindset that you will ask every single question you have to gain clarity on your endometriosis diagnosis and treatment options. Endometriosis is an aggressive inflammatory disorder that can have a devastating impact on your quality of life. It would help if you carried an even more aggressive attitude toward trying to stop it dead in its tracks.

6. Bring a List of Questions.

What’s been bothering you the most? Pain? Bowel symptoms? Bring a list of all the important questions that you want answers to. Writing them down will help you not forget during the appointment. Furthermore, when the doctor sees you have a list of questions you want answers to, it makes it harder for them to get up and walk out of the room like the appointment is over. If something like that has ever happened to you, we are sorry you’ve experienced this. That’s why it’s crucial to find a vetted endometriosis expert.

7. Take a Support Person With You.

Finding a good endo expert is no easy task (unless you use iCareBetter to connect you to one). If you are the type of person who is a bit shy or feels intimidated, you should bring your best support person to the appointment with you. Even if you are not nervous about your first endometriosis specialist appointment, having someone you trust by your side can help you process the information and encourage you along your journey. If no one you would like to accompany you, consider bringing a recorder and taping the visit. Because this can help you go back later and make sure you’ve understood all the information. Most doctors will have no qualms about recording your visit.

Endometriosis Care Process with iCareBetter

1- Find an expert based on keyword/ specialty or state
2- choose your doctor from the list
3- Get the contact info
4- First call and consultation.
5- Get info regarding costs and care process
6- Receive care

We Want to Hear From You

Have you been to an endometriosis specialist (OB-GYN experienced in endo)? If so, is there anything you wished you would have done differently? If you’ve not been to an endo specialist yet, what is your biggest concern about the first doctor visit?

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Endometriosis Specialist For Diagnosis, Treatment, & Surgery

Why Is It Crucial for Your OB-GYN to Be an Endometriosis Specialist?

When it comes to the treatment and management of endometriosis pain and/or other symptoms, all doctors are not the same. In fact, if you have or suspect you might have endometriosis, you may be left disappointed with the answers (or lack thereof) you receive from a general obstetrician/gynecologist (OB-GYN). 

It can be a bit tricky to find an endometriosis specialist who is highly skilled and follows the best endometriosis treatment and management practices for this disorder. If you want to learn more about endometriosis, read this article that gives an introduction to the condition, signs and symptoms, causes, complications, and treatments.

With so many myths about endometriosis (endo), it’s important to separate facts from fiction. Arm yourself with research and a solid foundation of knowledge to help you simplify the process and get in touch with a trusted endometriosis specialist. Keep reading to find out why it’s so important to use an endo expert, red flags that your doctor/surgeon is not the right fit, and how to find an endometriosis specialist near you.

Join the endometriosis forum or Instagram page and discover endometriosis stories and discussions.

Understanding Endometriosis: An Overview

Endometriosis, a perplexing and often debilitating condition, affects a significant number of people assigned females at birth, primarily during their reproductive years. It occurs when endometrial-like tissue, which typically lines the uterus, implants and grows outside the uterine cavity. These lesions can have debilitating effects on the body, mediated by estrogen, they produce inflammation and can create structural changes due to scarring and adhesions, ultimately contributing to chronic pelvic pain and, in some cases, infertility. 

Endometriosis is a primary contributor to infertility among women, as the tissue implants can interfere with ovarian function or obstruct the fallopian tubes. In severe cases, the tissue may even spread beyond the pelvic region, affecting other organs. While the exact cause remains elusive, researchers have proposed theories involving retrograde menstruation, genetic predispositions, and immune system dysfunction.

Symptoms: Recognizing the Signs

The symptoms of endometriosis can vary widely among individuals, ranging from mild discomfort to severe, debilitating pain. Common manifestations include:

  • Pelvic or lower back pain during menstrual periods
  • Painful intercourse
  • Abnormally heavy or prolonged menstrual bleeding
  • Infertility
  • Fatigue
  • Painful urination or bowel movements during menstruation
  • Digestive issues like diarrhea, constipation, or nausea

If you experience persistent or worsening symptoms, it is crucial to seek medical attention promptly.

The Diagnostic Journey: Unveiling Endometriosis

Diagnosing endometriosis can be challenging, as the symptoms may mimic those of other conditions. Your healthcare provider will typically begin by reviewing your medical history and performing a physical and pelvic examination. However, a definitive diagnosis often requires a laparoscopic procedure.

During a laparoscopy, a thin, lighted instrument called a laparoscope is inserted through a small incision in the abdominal wall, allowing the surgeon to visualize the pelvic area and identify any endometrial tissue implants. In some cases, a biopsy may be performed to confirm the diagnosis.

Additional tests, such as ultrasounds, CT scans, or MRI scans, may be ordered to assess the extent and location of the endometrial lesions, particularly if deep infiltrating endometriosis (DIE) is suspected, where the tissue grows into surrounding organs like the bowel or bladder.

The Pivotal Role of Endometriosis Specialists

endometriosis specialist

While general gynecologists can provide initial evaluations and basic treatment options, endometriosis specialists are uniquely qualified to manage this complex condition effectively. The right specialist will have extensive knowledge of this disorder and the additional surgical training and skills it takes to effectively treat endo and related conditions. These specialists, typically obstetrician-gynecologists (OB/GYNs) or reproductive endocrinologists, possess extensive knowledge and surgical expertise in treating endometriosis and related conditions.

Endometriosis specialists are trained to utilize advanced surgical techniques, such as laparoscopic or robotically assisted procedures, to meticulously remove endometrial lesions and scar tissue. They have access to state-of-the-art equipment and a comprehensive understanding of various treatment modalities, including hormonal therapies, pain management strategies, and complementary approaches.

Moreover, these specialists often collaborate with a multidisciplinary team of professionals, including colorectal surgeons, urologists, pain management specialists, and mental health professionals, to provide holistic care tailored to each patient’s unique needs. The  openness to complementary treatments and a thorough understanding of various treatments are some other advantages of choosing an endometriosis expert and not just a regular OBGYN.

Red Flags About a Potential Endometriosis Expert

It’s important that you pick an expert who knows what they’re doing to support you. Unfortunately, there are a lot of myths surrounding surgical best practices when it comes to endo treatment. What’s even worse is that some of these options could result in infertility or other issues, and not even address the underlying endometriosis condition.

The following are red flags that could indicate the doctor you are speaking with is not a trusted endometriosis specialist:

  • If the doctor views hysterectomy as a definitive treatment. Caution any doctor who says removing your uterus/ovaries will cure you. While this may be the correct course for some patients, it’s not a cure-all solution as endo lesions can affect other body parts and endo tissue could continue to grow.
  • If the doctor says endo symptoms will go away with menopause. In medically, naturally, and surgically-induced menopause, there are women who have endometriosis afterward.
  • If the doctor says mild stages of endometriosis won’t cause infertility. This is just false. “Mild” or “minimal” stages of endo can still produce significant symptoms, including those that impact fertility.
  • If the doctor says that negative tests rule out an endo diagnosis. Tests such as labs, ultrasound, or magnetic resonance imaging (MRI) can help with the diagnosis and staging of endometriosis, but they cannot rule it out. Technology has advanced, and transvaginal ultrasound can help in assessing and staging endometriosis; however, it cannot rule out the diagnosis. The same is true for MRIs and laboratory studies.
  • Hormone therapy will cure endometriosis. Studies show that hormonal medications may help temporarily reduce endometrial lesions (possibly) and manage symptoms, but they do not cure the disease.
  • If the doctor suggests that recurring endometriosis cannot be treated.
  • If the doctor tells you that you are too young to have endometriosis. This belief is completely false. In fact, there are adolescents who had chronic pelvic pain that were diagnosed with deep infiltrating endometriosis (DIE). 
  • If the doctor suggests it’s only irritating bowel syndrome (IBS). Many symptoms of endometriosis and IBS overlap. As such, this is often a misdiagnosis given to people who, in fact, are suffering from endometriosis. Please notice that this doesn’t mean that the patient doesn’t also have IBS in conjunction with endo.

Treatment Options: A Comprehensive Approach

The treatment approach for endometriosis is highly individualized, taking into account factors such as symptom severity, fertility goals, and overall health status. Endometriosis specialists typically employ a combination of medical and surgical interventions to alleviate symptoms and address underlying issues.

Medical Management

For individuals not actively seeking pregnancy, hormonal therapies are often the first line of treatment. These medications aim to suppress ovarian function and manage symptoms of endometriosis.  Common options include:

  • Combined hormonal contraceptives (birth control pills, patches, rings, or injections)
  • Gonadotropin-releasing hormone (GnRH) agonists or antagonists
  • Progestin therapy (levonorgestrel-releasing intrauterine devices, contraceptive implants, or oral progestins)
  • Aromatase inhibitors (in combination with other hormonal therapies)

While these medications can effectively manage symptoms for some, they are not curative and may have side effects such as hot flashes, vaginal dryness, or bone loss. Endometriosis specialists can guide patients through the potential risks and benefits of each option.

In cases of severe pain or discomfort, nonsteroidal anti-inflammatory drugs (NSAIDs) like ibuprofen or naproxen may be recommended for pain relief, either alone or in conjunction with hormonal therapies.

Surgical Intervention

The gold standard for diagnosing endometriosis is laparoscopic surgery with histological diagnosis. Meaning, that during surgery, you are diagnosed, and when the lesions are removed, they are sent to a pathologist who will confirm the diagnosis. Ideally, a proper excision surgery should be performed at the same time as the diagnosis. Endometriosis specialists are trained in various surgical techniques, ranging from minimally invasive laparoscopic procedures to more extensive open surgeries, depending on the severity of the endometriosis and the training they’ve had. 

Laparoscopic surgery, often referred to as “conservative surgery,” aims to preserve the uterus and ovaries while removing endometriosis lesions, adhesions, and scar tissue. This approach can improve fertility outcomes and alleviate pain, but endometriosis may recur over time. However, in some cases, a hysterectomy may be performed laparoscopically in addition to endometriosis excision if there are other concerns, such as adenomyosis, and fertility is not desired. 

Complementary Therapies

In addition to traditional medical and surgical treatments, endometriosis specialists may recommend complementary therapies to manage pain and improve overall well-being. These may include:

  • Physical therapy to relax pelvic floor muscles and alleviate pelvic pain
  • Acupuncture, which has shown promising results in reducing endometriosis-related pain
  • Dietary modifications and supplements (e.g., omega-3 fatty acids, magnesium)
  • Mind-body practices like meditation, yoga, or cognitive-behavioral therapy to reduce stress and improve coping mechanisms

It is essential to discuss any complementary therapies with your healthcare provider to ensure they are safe and appropriate for your individual situation.

Seeking Fertility Treatment

For women with endometriosis who are struggling to conceive, endometriosis specialists can collaborate with reproductive endocrinologists to develop a comprehensive fertility treatment plan. Options may include ovulation-inducing medications, intrauterine insemination (IUI), or in vitro fertilization (IVF).

IVF, in particular, has shown promising results for women with endometriosis, as it bypasses potential obstacles caused by the condition, such as blocked fallopian tubes or impaired ovarian function. Endometriosis specialists can provide guidance on the most appropriate fertility treatment based on the individual’s age, severity of endometriosis, and overall health status and recommend a tailored treatment plan as to when would be the most ideal time for these types of treatments.

Finding the Right Endometriosis Specialist

Choosing the right endometriosis specialist is crucial for effective diagnosis and treatment. When seeking a specialist, consider the following factors:

  • Experience: Look for specialists who have extensive experience in treating endometriosis and related conditions, particularly in performing advanced surgical techniques.
  • Qualifications: Endometriosis specialists should be board-certified OB/GYNs or reproductive endocrinologists with specialized training in endometriosis management and specialized in treating fertility problems.
  • Communication and rapport: A good specialist should actively listen to your concerns, explain treatment options in clear and understandable terms, and foster a collaborative relationship.
  • Multidisciplinary approach: Specialists who work closely with other healthcare professionals, such as colorectal surgeons, pain management specialists, and mental health professionals, can provide more comprehensive care.
  • Accessibility: Consider the specialist’s location, availability, and affiliation with reputable medical centers or hospitals that regularly treat endometriosis.

Additionally, seeking recommendations from trusted sources, such as support groups, online forums, or your primary care physician, can aid in finding a qualified endometriosis specialist in your area.

Endometriosis Support and Resources

Living with endometriosis can be physically and emotionally challenging. Seeking support from others who understand the condition’s impact can be invaluable. Consider joining a local or online support group where you can share experiences, receive practical advice, and find a sense of community.

Additionally, numerous reputable organizations and websites offer educational resources, up-to-date research findings, and support services for individuals with endometriosis. These resources can empower you with knowledge and provide guidance throughout your journey.

Conclusion: Embracing Hope and Empowerment

Endometriosis is a complex condition that requires specialized care and a multifaceted approach to treatment. By partnering with an experienced endometriosis specialist, you can navigate the diagnostic process, explore various treatment options, and develop a personalized plan tailored to your specific needs and goals.

While the journey may be challenging, embracing a proactive and informed approach can empower you to take control of your health and improve your overall quality of life. With the right support and guidance, it is possible to manage endometriosis effectively and find relief from its debilitating symptoms.

Remember, you are not alone in this journey. By seeking out knowledgeable healthcare professionals, connecting with supportive communities, and advocating for your well-being, you can overcome the obstacles posed by endometriosis and reclaim your vitality.

 

REFERENCES : 

https://icarebetter.com/endometriosis-specialist-for-diagnosis-treatment-surgery/

https://nyulangone.org/care-services/endometriosis-center

https://www.endofound.org/preparing-to-see-a-doctor

https://www.mayoclinic.org/diseases-conditions/endometriosis/diagnosis-treatment/drc-20354661

https://www.uwmedicine.org/conditions-symptoms/reproductive-sex-organs/endometriosis

 

 

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